Because I Can!

It's inevitable, isn't it?  Social networking is like trying to have a picnic beneath a buzzing hornets nest.  We know the situation is precarious, especially when so many have now succumbed to chronic butt-hurt, and yet we persevere, post to our little heart's content, and laugh at the wrath some things inspire from unstable people.  We try to understand, and some will try to edit what they post in order to 'keep down the drama.'  Thing is, the drama is on their side, not ours.  I mean, getting bent out of shape over what someone posts is a lot like being offended by the furniture in your neighbor's house... and saying so.  It's rude, and it's inappropriate.

So why do people do it if it's just going to stir up trouble?  Well, the answer to the question is in the question itself.  Some people are addicted to drama, and you can spot them readily because they'll be the ones complaining constantly, and in their passive/aggressive manner, about everyone else's "drama."  I know you guys have seen this.

I'm always a little amazed, watching them melt-down, lose control, judge others for speaking their minds, all the while trying desperately trying to blur the line between 'victim' and 'bully.'  Know the type I'm talking about?  These are the people who will call you an idiot while claiming they're above such behavior.

It's perplexing.

Here's the thing: Social networking doesn't come with a carte blanche card to attack other people's views, etc.  You have a choice to keep going if you see a post you don't like, and most stable, intelligent people will do just that.  And yes, there are exceptions, such as someone outright attacking, bullying, posting personal or sensitive information about you, etc.  I mean, by all means.. call them out on it if they do that, and be sure to block their sorry asses when you're done.  Nobody likes a bully.

Now, you also have to practice what you preach.  I choose not to comment if I don't like something, and I refrain when possible the urge to behave in passive/aggressive ways.

I personally don't believe we should censor our speech just to make other people more comfortable.  DO know that I'm NOT including bullying in this, because that will NEVER be okay.  Not ever.  But outside of bullying, we can say what we want, given it's within keeping with said SN TOS.

My personal experience in this current political climate has been that the chronically butt-hurt come out in force when I post something that isn't in keeping with their own views.  One person in particular has taken to some very nasty commenting on posts he doesn't agree with, and often it's simply posts in support of who my chosen presidential candidate is.  Now why would anyone have to vomit nastiness on a positive post?  Who knows?  Who cares?  My posts on my page aren't open to bullying and nastiness.  I will either delete your posts or block you.  Enough is enough.  For the record, I've not yet blocked this other person, but that could change quickly after today's nastiness.

When has free speech turned into 'free to bully'?  I don't have the answer to this question either, but maybe it's more a rhetorical reference than anything else.  Either way, some people really don't understand how stubborn I can be when it comes to another trying to control what I do, how I think, how I feel, and so on.  Yeah, I can assure you.. you really don't want to poke the bear like that.

Bullying doesn't work on me, and you'll find quite the opposite response than what you hope for.  But then, I think these types of drama queens actually WANT the drama, which is why they spend SO much time tossing insults.  Why else would they do it if that's the only payoff?

So today this person went on a rant, tossing in character assassination remarks and such, and quite a few at that.  But the main complaint is that he didn't want to see political posts and actually stated that if you're posting more than 2-3 per day that your friends are "Fucking sick of you."  Well, what he thinks was a clever cut down and shaming tactic I see only as a challenge, and one I accepted right off.  Today is going to be a day when the political posts will continue.. all.. day.. long.

I don't give in to bullies, who are really just cowards anyway.  My page, my posts, and anyone who doesn't like it can click the 'unfollow' or 'unfriend' button!  You can't bully me.  You can't censor me.  And you can't control me.

Challenge me, and you may be surprised at my response.  And remember, you can't un-ring that bell.

I also practice what I preach: if I see a post I don't like... I move on.  Having the restraint to NOT react is empowering, because when you do as that other person did today you show weakness, an inability to control your own emotions and behavior.  Why would anyone willingly do that?  There are venues outside of social media to air your grievances if needed.  Hell, I have blogs where I can speak my mind and get things off my chest WITHOUT drawing attention to the person I may be talking about.  Having been at the receiving end of abuse and character assassination I choose to refrain from going down that road if possible.  But I assure you, I'm NOT afraid to stand up for myself; that's a completely different thing altogether anyway.

As they say... haters gonna hate. ;p

the invisibility of being.

Throughout my life I've been pretty thin-skinned, listening to others tell me what I should/shouldn't be, what and how I should think, do, say, dream... developed into an art form for me that damn near reached "Spidey Power" status.  No, seriously.  I would take and wear whatever anyone projected upon me like a shiny pair of Jimmy Choo's.  And trust me when I say that two-sizes too small absolutely made a difference in how I felt and carried myself through life.

Barefoot is better.  Know what happens when you go barefoot the majority of the time?  The soles of your feet get pretty damn tough.  Having grown up poor I had only one pair of shoes (cheap) at a time and wasn't really allowed to wear them outside if I were just playing in the yard, etc.  They had to last until my mom decided we could afford more.  I think I had the toughest feet of anyone I've ever known because of this.  The only thing that really hurt me was if I stepped on glass (which I did a few times, once landing me in the ER to have the glass removed), and when that California asphalt and concrete got hot enough to fry an egg on.  Even so, over time walking barefoot didn't bother me one single bit.

But what about the INSIDE?  Oh, but that was a whole different story altogether.  I couldn't walk my way through through the pain to being 'thick-skinned' and pretty much felt the weight of anything and everything that was said to me.  Criticism became truth, a 'reality' handed to me that I willingly took.  My childhood experiences weren't filled with encouragement or praise nor even helpful criticism.  Indifference and criticism, and many times complete withdrawal of love and affection were the tools used to shape the person I would become.

I was to become the child who survived.

In adulthood, that small child I once was is alive, and though not well, that part of me is AWARE.  There is still a disconnection of who 'that little girl' was and who I am now, and I still see photos of when I was little and feel such pity for 'that little girl.'  Yes, I know it's me, of course.  But the disconnection is still there just the same.  I want SO much to apologize to her and say "I'm sorry I didn't protect you!"

I've accepted this disconnection as a part of who I am, but I don't like it one single bit.  C'est la vie.

I remain thin-skinned, but my reaction to criticism, disrespect, and so forth is very different now.  I've allowed history to repeat itself in relationships I've had, and the reality of this has unprecedented tenure, so it would seem.  It will be with me the rest of my life.  Okay.  I'll just have to work around that when possible, right?

So here I am all grown up and stuff.  I can make decisions, change my mind, and walk away from anyone or anything that threatens my happiness; such are the benefits of being an adult.  Right?  Well, not exactly.  At least not for me.  That subconscious, that inner child, the child I actually WAS at one time so long ago, well.. she has a mind of her own and remembers the pain, the isolation, the indifference, the coldness, the invisibility of being... well, me.

Such memories carry over for the long-haul and map the course of life in often undesirable ways.  But it doesn't always have to be like that.  I can do more to help myself in that respect.  And I do.

On bad days, of which I have far too many these days, that inner child is the one who suffers most.  Sure, I feel the physical pain, and I feel the isolation of my situation and all it invokes (depression, anxiety, etc).  But it's what happens INSIDE that changes my world, my life.  All I can do is anesthetize myself with too much coffee, reading, and way too much television.  My physical body simply refuses to allow much more these days.  That's okay, because eventually the AIH and the 'possible' Myositis, both autoimmune, is driving the bus now, and not even my inner child can rebel against that and affect change.

Sitting here in the quiet, drinking coffee, talking about things I've not talked with a single other human being about...well, but for one therapist for a very short time, I can definitely say I recognize my life as it was, and as it still is; The invisibility of being... me.

Finding Me

I'm not lost.  I'm not invisible, though I FEEL that way most of the time.  I know who I am, for the most part.  I can look at my life objectively and see where I've gone terribly wrong.  I have a sense now of protecting my health, my sanity, my life, and I won't allow anyone to derail that.  I've come a very, very long way.

I have a purpose just like any other, and a couple of relationship experiences has taught me that I can't lose sight of the fact that I don't need anyone else telling me I'm worthwhile.  Selfish people will spend a LOT of time telling you you're not worthwhile, not worth their time, effort, love.  And why do we allow this?  The answer to that is different for every person, but the one thing that we all have in common is the TYPE person we chose to bring into our lives.

I'm right here, right now, alive and feeling; I've always been here.  Though a couple of people I had in my life tried frantically to diminish who and what I am, and they nearly succeeded, they FAILED.  I know this because I was able to finally walk away from the situation and felt that terrible, heavy weight lift as I did so.  Even in the absence of real closure I know I saved myself by steering clear.

This situation I'm in now with my health is a big uncertainty in my life and I have to accept that.  I have no idea, going forward, what to expect and have to take things one day at a time, literally.  What little energy I have can't be spent on yet another person who doesn't have my best interests at heart or in mind.  Now, on the surface that may sound selfish, but since my health and life are at stake.. I can't leave anything to chance, nor can I just pour my life and future into someone else the way I had in the past.  There's nothing selfish about taking care of myself, and it's taken me a couple of years to actually believe this.

I don't care if anyone thinks I'm selfish right now.  I do all I can for others as much as my energy and health will allow.  The people who love me understand.  And the people, past and present, who don't love me don't understand at all and stand in judgment.  Thankfully, the numbers in that particular group are ridiculously small.

This is not the time for me to turn my focus away from the very real AI disease(s) I'm dealing with.  Both the one confirmed and the one yet-to-be-confirmed are very serious and require life-long treatment.  No one has given me a prognosis, because there's really no way to at this point.  No one can guarantee me anything, and what they're left with is telling me the possibilities as far as what my life expectancy is WITH and WITHOUT treatment.  I've started treatment, as you guys know.  I've begun that journey, but it's going a lot slower than anticipated.  Still, my odds with treatment are far better than without.  Even knowing THAT I'm given NO guarantees of what will be a year from now, 5 years from now, or even next month.

All I can do is take very good care of myself and avoid stress and anxiety.  And herein lies the biggest problem--my life with T, my past that haunts me... all bring stress and anxiety in like a flood.  Not 24/7.. but enough to make each day just one more opportunity to work my way past that.

Finding myself sounds so damn cliche, and so much so that I cringe just thinking those words.  But it's something I can't ignore.  I'm here, but I don't recognize the person in the mirror, the sick person with the dark circles under the eyes, etc.  It's okay, though.  I know and understand the drill.  That sick person in the mirror needs TLC, patience, understanding, and love.  I'm really pretty much the only one that can provide that.  It's still me in there, looking back...


It's still me in there looking back....

I've Had it...

Trust me when I say... it's taken me from approximately 7:20am to 10:37am JUST to calm down enough to write.  Waking to indifference each day is grating on my nerves and sucking the life out of my life.  I'm not in the greatest of moods at the moment, and I'm not about to pretend I am.  It's been one HELL of a morning... let's just start there, shall we?

Okay, so all of my life I've believed that the old saying "Anything worth doing is worth doing RIGHT" is a damn good foundation for anyone's life.  Half-Assing ANYTHING reveals a lot about a person.  And by 'half-assing" I mean not putting everything you have into what you're doing.  Not to say your "everything" may not be on the same level every day, but putting in 100% of what you can is all anyone can really ask.  And why not?  Why would anyone do anything less than 100%?  When you take shortcuts you leave someone else to make up the difference in distance you weren't willing to go.

NOTE:  As always, unless I'm writing something aimed at someone in particular... the word "You" is used loosely and not meant to point fingers at anyone here.

My health is bad--I've spoken of this a lot in my blogs.  Dealing with one confirmed AI disease (AIH) and going through the paces of confirming a second means.. I'm NOT in remission.  I won't BE in remission for a very long time (I'm told).  The blood work COULD very well improve, the numbers will improve and possibly quickly, but 'remission' is more than numbers.  I won't go into all of that, but suffice it to say every single day is a battle to get through.  So here I am living with someone who, by nature, does ONLY what he can get away with and not a scintilla more.  What does this mean?  It means I have to take up the slack.  I not only have to do what I need and have to do, but I have to take up the slack from what he only does PART-WAY.

Half-Assers are a HUGE pet peeve of mine!

Look, I realize there will be days, times, and situations where you may have to take a short cut or do what you can in that moment.  But I also know that there are things that HAVE to be done correctly, thoroughly.  I mean, you can only short-cut your way through things until you end up with a completely and totally chaotic mess that SOMEONE ELSE will ultimately have to deal with.  Why the hell would you do this to someone, especially someone you claim to "love"?

This morning, like so many mornings (every morning!) I found myself forcing my way through cleaning up after T.  And I mean, cleaning up as in it takes me some 45-hour JUST to pick up the slack of his half-assed whatever.  Have I spoken to him about this?  Of course I have, and 2 years ago, when it really began, I was very calm, loving, and discussed the matter with him in hopes he would see what he was doing.  I mean, he's a grown up, and I'm not his mom.  He can pick up after himself, because he's no Ward Cleaver and doesn't treat me like Joan.  The family of the 1950's and 1960's are GONE.  Marriage and relationships aren't centered around women being in servitude.

Now, women who are treated with respect, treated kindly, appreciated.. will do almost anything for their guys.  It's how we're wired.  We're wired to be caretakers, caregivers, at least most of us.  However, when taken advantage of we often will begin to back off from all those things we once did easily, eagerly, and happily.  When taken for granted... we don't see any reason to continue giving when there's only taking from the other side.

And please, don't confuse this 'give and take' with material things or money, etc.  Because those things don't bring happiness, not ever.  What I'm talking about here is doing one's part in the relationship without placing the blinders on and thinking it's really just all about the other person doing all the work.

I've been in a relationship where everything was dumped solely on my shoulders.  People who know me, who pay attention, find out quickly that I can't be bought.  You can't buy your way out of unhappiness.  You just can't.  Being poor and happy is FAR FAR superior than being well-off and miserable.  Money can't get rid of unhappiness.. I really can't stress that enough.

Doing your part, that's what it's about.  Not placing necessary pressure or expectations on the other person is what it's about.  Respecting the other person's time is what it's about.  And soooooo much more, or course.  But when it comes to half-assing your way through chores because you know the other person will take up the slack for you... that's a sure-fire way to turn that person off, long-term.  And good damn luck getting them to be turned on again.

Being taken advantage of is not good foreplay.
Being taken for granted is not good foreplay.
Doing and not doing things that make the other person's life more difficult.. is not good foreplay.
Being overtly, blatantly lazy isn't sexy.
Indifference isn't sexy.
Ignoring someone isn't sexy.
Not respecting the other person's space, time, and needs isn't sexy, nor is it good foreplay.
Being mean, hateful, abusive.. isn't sexy, and it makes for LOUSY foreplay.

You treat me like shit, I'm going to shut down.
You abuse me, mentally, verbally, or physically.. and I'm going to shut down and NOT be into you.
Take me for granted and I'll stop doing things for you.

It's taken me years to get to this point, and I've been a welcome mat for a couple of people and won't ever allow myself to do that again.  I don't need anyone THAT much.  If I'm treated badly, eventually I won't feel anything at all for you, and you're going to find out that you really just can't un-ring that bell.

You can't buy me or my love.  I'm not for sale.  If you do something you claim is out of kindness or whatever, and you use it against me later.. you've given your true motive away!  Once I SEE you, what and who you REALLY are, I won't be able to see that 'other' person ever again.  Once you blow it, you blow it.

T is lucky in that there's still about 2% hope here.  This morning was just about the final straw, but I fought and worked my way past it, and I'm telling you it was DIFFICULT!  He knew, too.  He knew the moment I pointed out to him what he'd done.  He tried to backpedal, tried to reassure himself that he'd not blown it VIA me.  But what was done was done, and the disingenuous nature of what he did wasn't lost on me at all, and it broke something inside and change, again, the way I see him and feel about him.  Being disingenuous is exactly like lying, and I'm DONE being okay with men who lie to me, either by omission or right-out.  DONE.

That 2% of me that is still open to his finding a solution and fixing the whole disingenuous thing is stretched very thin.  He's running out of time.

Honesty and respect are MORE important than love.  My last relationship taught me that, opened my eyes to the fact that without those first two things.. LOVE CAN'T EXIST!  Love CANNOT exist in the absence of honesty and respect.

Besides struggling through a VERY PAINFUL morning trying to finish half-assed attempts at whatever, I also had to deal with the tuning me out thing, the thing where he pretends to vaguely respond because he knows he didn't hear a thing I just said.  No matter... I don't repeat myself anymore.  I do let him know, however, that I get that he didn't hear me and that all the begging in the world to repeat myself isn't going to make me do so.  After a year or more of this not listening/tuning me out thing.. I've grown intolerant to it.  I've told him that, fine, if he's that disinterested in what I have to say then I'll simply 'tell someone who gives a shit.'  He doesn't like it, but it's no longer about what HE likes and doesn't like anymore.  I've taken the first step in getting MY life back, replacing the disrespect he shows towards me with my own SELF-RESPECT; something I really should've done a long, long time ago.  Better late than never, I say.

So this morning was NOT a good morning.  But I'm going to spend the remainder of my day taking care of myself, focusing on what I can do to help myself heal, and incorporating those things that will protect me from further harm from anyone, especially from the person I'm living with.  Yes, I still have to work through the damage from the past relationship, but that's already underway and will help with my current situation.

Well, that's where I am today.  It will get better, and I will keep persevering... as long as I can.

Not Now!

Yesterday was really hard.  Whether it be from the big jump in Azathioprine dosage, the actual AI issues I'm dealing with still, or a combination of that and more, the result is finding myself in bed by about 5pm.  The nausea, the lower back pain when I stand and walk, the weak and achy limbs, and the absolute NEED for peace, comfort, calm... these are the things that made up the entirety of my day yesterday.  I still tried to post in my blogs, but I have to admit I had a very difficult time in doing so.  A VERY difficult time.

Coffee has been the driving force to what all I do on any given day, and many times (like yesterday) it wasn't of much use.  Tastes good, though!  It's one of my few indulgences.  Still, I really wish I didn't have to use caffein to make it through the first half of my day.

I'm having some trouble organizing my thoughts today, so bear with me...

In the midst of the health issues T still fails to recognize the importance of avoiding conflict.  He knows, and only because I've told him, that just being on the prednisone alone lowers my tolerance for stress.  Prednisone suppresses the immune system, and it also suppresses cortisol... the anti-stress hormone.  Yes, the Pred is on board, but both adrenalin and cortisol can't swoop in and save the day now.  What this leaves me with is having to deal directly with the anxiety and stress brought about by, well, to be blunt... absolutely stupid crap.  I'm sorry, but I'm all for picking one's battles, something T doesn't and won't do with any care or forethought.

Not paying attention when I say something, tuning me out, etc... forces me to constantly repeat myself.  It's tiresome, and it drains me to have to do this.  I've taken to just saying "Nevermind" in response most of the time, because it really just isn't worth it to have to constantly repeat things.

Knowing what I face every day does little to help me feel better, positive, upbeat, and hopeful.  I know that the Battle-To-Be-Heard is a daily one, and one that tears me down on a day basis.  I often wonder which is worse--dealing with a narcissist, or dealing with someone who, for all practical purposes, just isn't present most of the time.  I don't think either is a good choice, at least not for me.

The only thing I can do now is minimize my exposure to those situations, the ones where I'm not heard, where IMPORTANT information is forgotten, where I drag myself through most conversations because the other person isn't plugged-in.  I have only one real defense in this case... and that's just to say... "Not now!"

"Not now!"

It will have to do...

Do You Hear Me?

One common theme you guys see here is about 'listening,' you know.. simply NOT tuning someone out when they're talking to you.  Not to say as human beings we can't or aren't ever distracted, or we forget, or whatever the case, because that can and does happen.  What I'm talking about is the chronic habit of just not listening when someone talks.  It's the epitome of rude, of not caring, and shows a blatant absence of empathy and compassion.  This is NOT a good thing, folks.

As more is uncovered with my failing health, as things become more complicated as to the treatments, as my body revolts by making even simple tasks nearly impossible, I find my tolerance for being tuned out and/or not taken seriously has pretty much vanished.  I've hung in there for over a year dealing with this, and I'm just not on board with it anymore.  But you guys know this by now, I'm sure.

One more night of repeating myself, asking questions where the answer was already given, and finding myself in the middle of a energy-draining diatribe where T argues the argument and tries to blame everything on me.  I didn't say it right, didn't speak loud enough, said it at the wrong time, or just wasn't clear enough.  I'm calling BS on all of that, because I can't be anything other than perfectly clear these days.  I'm sick and weak and painful, which doesn't leave me a lot of energy to be creatively-difficult.  Hell no.. I HAVE to cut to the chase, because I don't have enough strength or energy to do anything else.

Why do I bother?  I've been here before and know how it plays out.  Men love to believe they're right, the only ones with answers.  No offense to any guys reading this who aren't cut from the typical cloth.  I know you exist and appreciate you all.  What I'm speaking of here are men who decidedly "Take the path of least resistance" and spin things in their favor.  Hey, if it works for you, congratulations.  But my guess is.. it absolutely doesn't.

Can women be like this?  Sure they can!  But for the sake of argument here, and from my personal standpoint and experience, I've dealt with MEN who do this, which is why that's my focus.

I can't make someone hear me, listen to me, respond to me, or respond or care or give a crap from any standpoint or view.  I can ask.  I can point out the obvious, IF that person is open and not a total asshole.  But I can't make anyone change.  What happens, by default, is that I end up changing the way I communicate with such people, and that usually means... I stop communicating.  It's inevitable, and it's happened before.

Whether the approach is to be a rip-roaring ass or indifferent zombie, the result on MY end is the same.  I don't have any interest in sharing thoughts, dreams, life, whatever with someone who is a jerk in response or barely hears what I'm saying, much less remembers what I'm saying.  Why on earth would I waste so much effort on people who doesn't deserve it?  Rhetorical question, of course.

I'd like to finish my thoughts on this, but unfortunately the jump in dosage of the Azathioprine is kicking my ass.  I will have to finish this another time...

Thanks for your patience, guys....

Family--Beating My Head Against the Wall

To say I come from a dysfunctional family is putting it mildly.  Further back than my own memory reaches my siblings have hated me.  No, really, I'm not making this up or being dramatic.  I don't talk about this much because it brings a lot of sadness and discomfort, anger and resentment rushing to the surface.  It's a long story, really, and one with gaps and holes and far-reaching voids where many memories have vanished.  It would be oh so much easier had I been adopted, because I know virtually nothing about my family tree, for all the asking I've done over the years, and my parents are both deceased with my having absolutely NO idea where I came from, who my ancestors are, or what my connection is to any of them, if at all.

I was a "Mistake," according to my mother.  Now, my relationship and experience with my mom is a story in and of itself, and honestly... I could write a novel here about that.  But I'm not going to.  Let's just say my mom was disconnected by the time I was born, old enough to be my grandmother, and about as unplugged as a parent could get.  It was easier to micromanage and control everything to a damaging degree, rather than create experiences that may have given me a chance and coming out on the other side with less 'issues.'  Yes, of course I have issues, and in a way it was my mom's only legacy.

How is it that I could know little of nothing, if anything, about anyone in my family tree?  Well, that's easy--when you don't answer questions, share nothing, and ensure that not a single photo, letter, information, etc. gets passed down to you... well, you can't ask a dead person questions.  Point blank, not pretty, but absolute truth just the same.

Everything from health/medical information was shared primarily with ONE of the 6 children, and I wasn't the one who got the information.  My eldest sister was my mother's confidant, her go-to gal, and there was an almost too-close relationship between my mom and my oldest sister (old enough to be my mom).  I spent my entire life on the outside, looking in, and it was that way until my mom passed away (over 20 years ago now).

One sister and I shared a dad, and my other siblings share a father form my mom's 1st and only marriage.  Yep, my other sister and I were illegitimate.  I could really care less about that, to tell you the truth.  My dad was out of the picture when I was 18 months old, and my mother really never spoke of him or his family except for some really scary things, very dark and scary things.  Now, it shouldn't surprise anyone that if you scare a kid like that, they're most likely not ever going to ask too many questions.  This was the case with me.

The siblings who had a different dad hate me.  Just the truth.  I was even told that one reason they despised me was that, because we were very poor, they often didn't get as much milk (the example used by one brother and sister) because when it came down to the wire... "The baby" (me) needed it more than they did.  I can't speak for what happened when I was a baby.  I can't apologize for something that I didn't do on purpose.  Yet that resentment carried right into adulthood for my 3 brothers and one sister.  BTW, I don't really think of them as brothers and sisters because they've not treated me as such throughout my life.  What memories I have of life with them.. isn't good.

I was born very late, with my mom being in her early 40's when she had me.  All my siblings (but for one) was grown and gone and with kids of their own, so I pretty much grew up like an only child from about age 10.. when one of my sisters married and moved out (she was 16).  We lived in a 3 bedroom house that was eventually condemned, and my mother (a hoarder) used all 3 bedrooms as her hoarding rooms.  My sister, the one I share a dad with, had her own room, lots of 'stuff,' decorated walls, record player, records, clothes, and a bike.  I didn't have enough toys to even have a toy box, so even in this respect I would find myself living an entirely different life than my sister... and everyone else, actually.

My mom was absent, indifferent, cold most of the time...and even cruel.  Skipping over more details than will fit here, I will say that my childhood was very, very odd, and the damage done has proven to be long-lasting.  Still, I spent my life longing for a family, a REAL family.  Now, coming from a family with 3 brothers and 2 sisters you would think that a strange thing for me to say.  Aunts, uncles, cousins... really had nothing to do with me, but for one cousin who, I guess, simply took pity on me.  I felt the hostility from them all growing up and didn't understand any of it at all.  I felt it, saw it, heard it, and experienced that hostility until we moved away from California.  We moved to Colorado because my oldest brother wanted my mom to move there so she could babysit while he and my SIL could work.  I was in 8th grade when we moved, and my life didn't get better at all.

Longing for a real family... even to this day....

I would eventually move away from the state of Colorado.  My kids and I, to make a long story short as possible, ended up here in the south along the Gulf Coast, where we settled into that strange place (strange to us because we weren't from there) and would end up calling the south "Home."  It's the only place that ever felt like home to me.  I'm still in the south, but a little further north by a few short hours.  But back to "Family"....

When my mom passed, naturally my eldest sister got everything.  Very important items my mom was holding for me until I could send for them were divided amongst my brothers and sisters and nephews... or just tossed out as garbage.  They did this QUICKLY after my mother died, the day they found out, using the excuse that they were sure that since she was on disability, got a veteran's widow pension, and on Medicare, etc... that the 'government' was going to come in and take her stuff.  Yes, LUDICROUS, but that's the excuse they used.  And when I arrived for her funeral I wasn't even allowed to so much as have a photo of hers.  My eldest sister 'allowed' me to take ONE photo to have it photocopied.  My mom had boxes and boxes of photos, btw.

Few actually had anything to say to me at the funeral, or after.  It was the same shit, different day.. only worse.  A few years later I'd tried once again to make some kind of connection with them, but it ended in a total disaster.  I finally came to my senses and realized that I was the only one putting in any effort and that it just simply wasn't worth it.  I basically told my oldest brother and his bitchy wife to piss off.  And yes, it felt great and was LONG overdue.

In the present....

I know pretty much nothing of my family history, my family tree.  My last living grandparent died when I was 2 weeks old, and everyone else was so much older than me that no one really had anything to do with me.  My mom wasn't really forthcoming with names, histories, etc., though she did incorporate some names and such in a few fun stories she would tell from time to time.  But as a little child I really had no idea if she were making the stuff up/telling fairytales, or if the information was actually true.  And after my mom's death... the information about grandparents and such were simply not given to me, even if I asked.  Photos, etc.... all given to my sister, who claimed some neighbor stole them, were lost.  My brothers, etc. chose badly when they decided to give my sister everything.  One person said they thought my sister pawned or sold the framed antique photos of grandparents etc for money.  Sadly, it sounds exactly like something she would do.

The cruelty extends into adulthood....

When one of my brothers passed away a few years ago I was told about this AFTER the funeral had taken place, and... I was told on Facebook by a distant cousin.  She apparently looked for me on Facebook with ONE purpose in mind, and that was to send me a message that read.. "B**** passed away last week.  Thought you'd like to know."  I asked "How/why?" which lead to her replaying in the same short, blunt fashion. She then disappeared and didn't say a word ever again.  I'd written back a couple of times.. with no response.  I'd written my nephew as well, and have been ignored.  And this nephew I grew up with and was very close to most of our lives.  He's only 2 1/2 years younger than I am.

Cruelty was their favorite weapon, and continues to be so.


The family tree...

As someone who feels completely disconnected from 'family' or blood ties, history... it only stands to reason that I would, eventually, WANT to know something about my own family history.  SOMETHING.  ANYTHING.  So when I decided to look into www.ancestry.com I felt like I was taking a step in the right direction.  Maybe this site could help me put the broken pieces together in such a way that I would at least see my connection within the bloodline.

What I've done...

I created an account at www.ancestry.com over a year ago, but since I wasn't really willing to invest any money into getting a full account, I've only spent the smallest bit of time there.  But that changed for me about a week ago when I saw a commercial online for Ancestry and a DNA test they offered that shows where your bloodline is from, at least in percentages.  A lot of folks have jumped on board for this.  Now, one cool thing about the DNA test and having a real account (which I don't yet) is that you can set your family tree to allow links between matches for DNA, region, etc.  It's a lot more complicated than that, and they have a video that explains it all, but it's a really neat tool and a good place to start.  But what about for someone like me?....

DNA results may be the only thing I really get out of this, and that's okay.  It's something, isn't it?  It would be nice to know for sure what ethnicities are involved in my family tree, even if I don't have any family history to see how the pieces fit.  I sent my kit off today and, from what I understand, it will take about a week for the results to get uploaded online.  Knowing it's not going to give me complete picture of my family tree... I'm still okay, and I'm fairly patient where that's concerned.

So what's my freaking point here?

My point is this: If you have information about family history (names, places, etc) please share them with your kids.  Don't leave them in the dark to spend the rest of their lives wondering who they really are (history wise), where they're from, what their history is, etc.  It's really not a good or easy thing to live with when you have no idea about those things.  Don't do that to your kids, seriously.

My desire to know more about my family history/ancestry runs deeper than the hurt from the disconnection from my actual 'family members.'  I rarely use the word 'family' when speaking about them.  They're blood relatives to me, but nothing more.

I have to wonder if I'm beating my head against the wall trying to piece together a family tree I know nothing about.  Names, birth dates, etc. are required to even do searches or make connections.  What little information I have really just stops at my mom, and my dad I have only a name and birth date.  It's really like hitting a brick wall.  But is it worth it, all of this effort?  I don't know.

I really just don't know.  The one thing I DO know is that I'm left with the question: Will I ever fully understand myself in connection to history and ancestry?

*shrugs*

A Few Precious Minutes to Myself

People sometimes want what they don't have, covet what they will never have, and forget to appreciate the important things they're almost guaranteed.  Why does this happen?  I can't speak for everyone and won't try to, but I do know ALL of us fall prey to this.  And if you're one of the few who think you don't.. I would suggest taking a few steps back and looking good and long at your life, because you may just be missing out in ways you never even realized.

We get too close to see the big picture.

It's not like I can't admit to over-scrutinizing my life and everything in it.  It's where I am at the moment, always in that mode of trying to figure things out and understand.  The whole understanding this is part of who I am, and yes... I can over-think things because of this.  It's okay, though, because eventually I discard the deadwood information I glean from digging in too deep.  It's a bit like cleaning house.  Seriously, if you look too closely for dust.. you're going to find it.  Yeah, you know what I mean.

I spend my insomniac nights over-thinking in order to try and solve problems.  It doesn't work.  I know it doesn't work.  But I do it anyway.  And I shouldn't, really, because it just makes me freaking tired.  Okay, so where am I going with this?....

Alone time.  Me time.  Just time to myself to sort through the muddle that's my life right now has become as important as sleep, as breathing.. because I'm finding that in that space, while I can actually take a breath and breathe, think, and allow the quiet outside to seep in a bit, I feel better.  No really, I just feel better in that state.  Maybe it's the whole needing to hang on to my independence thing, not sure.  But it doesn't matter the why as much as it matters what good it does to my soul, my spirit, my being..to simply have the time to take to regroup and heal inside and out.  It's hard to explain that last part, so I'm not going to try.  Many of you may already understand what I mean.

This morning, on a Saturday, I'm able to take time to just drink coffee, read a bit online, listen to the absolute quiet.  I hear the heater running, a ticking clock in the breakfast nook, the wind when it rushes through the big trees outside.  I hear all of this and know it's all about 'the still.'

I'm appreciative for these rare and precious moments when I have less pain, when the depression isn't taking hold, when I can sit and drink coffee and just... be... me.  Life will return shortly, and everything will change.  I'm hoping that this weekend will be peaceful and not filled with my chasing life while it dashes and darts away just out of reach.

In the meantime, as I sit here in the quiet, my past history visits.  This time, however, I'm not shaken by any of it and can simply look at what was and see it as.. 'what was.'

I'm not controlled by anyone anymore, and that gives me peace.

I don't have to use every single ounce of my energy trying to please another person, and that gives me peace.

I don't have to meet anyone's demands, and that gives me peace.

I can say "NO" to that which harms me, including people, and that gives me peace.

I don't need anyone to tell me I'm okay, or loved, or liked, etc, and that gives me peace.

I can take care of myself without guilt, and that gives me peace.

I don't have to ask permission for anything, and that gives me peace.

I can listen to my instincts and follow them, and that gives me peace.

My know my choices are mine, and that gives me peace.

I have found my voice, and that gives me peace.

I can speak my mind, my truth, out loud, and that gives me peace.

I don't have to explain myself unless I choose to, and that gives me peace.

I don't have to cater to another, and that gives me peace.

I choose to not be bullied, and that gives me peace.

I can stand up for myself without guilt, and that gives me peace.

I don't have to listen, take, or act on advice I know isn't good for me, and that gives me peace.

There is a long list of things that give me peace, and while my life isn't perfect (and NO ONE'S ever will be, including mine) it's still MY LIFE.  MY life.  So in this imperfection of life I know things won't always be rainbows and sunshine and butterflies (well, maybe butterflies).  I accept the reality of reality and can choose to live accordingly.  I can make these choices because I broke free from a relationship that sought to destroy all I am.  While I didn't come out of the station unscathed, I walked away with enough of myself to know I'm healing JUST by making that exit.  I walked right out of the dark and into life.

In the still I can sometimes see better, think more clearly, and take an inventory of what should be kept and what should be discarded or changed.  This isn't a bad thing, btw.  I realize what I need to work on.  I'm aware of those things that I need to change.

I'm not going to be anything but myself.  Gone are the days when I try to reinvent myself for another person.  And trust me, the whole 'reinventing' oneself thing isn't a bad thing as along as we remember to still be ourselves while making those changes.  Trying to be anything or anyone else is a total recipe for disaster.  I tried it to suit another and am still paying the price for that huge mistake.

Don't ever let anyone tell you to change who you are.  Take it from me, someone who's tried that, it will only wreck you.  The only thing you really need to remember when someone is trying to change you, insisting you change, is how that demand makes you FEEL.  If it feels wrong, it is.  Self-doubt isn't good either, and anyone who instills doubt within you by their words, their actions, their demands are simply trying to make THEIR life better while destroying yours.  Appreciate the person you are.

Appreciate the person you are.  This means, appreciate everything about you, the good, the bad, the kooky, whatever it is that's inherently you, appreciate it all.  Change those things that YOU see needs changing.  Listen to input from those who actually love you and hold your best interests in mind when they speak.

One more cup of coffee...

Trump Supporter Kambree destroys National Review

I'm posting this across my blogs, because this woman speaks for SO many of us.  The original video she made is a lot longer than this, but this gets to the key points directly.  She speaks for SO many of us....

Irrelevance

Choosing what's important from day to day can be a problem for me.  I mean, when situations reveal themselves I then have the opportunity to choose where within the timeline of importance it needs to be... for me anyway.  Why, then, is it that so much ends up being tossed into the box of irrelevance?  Does the hierarchy of meaningful events and such mean anything at all anymore?  Or is it that this lowered quality of life dictates what importance is placed on any given thing on any given day?  Could it be that I've really lost that much control already?

Sitting at my computer is hardly being productive.  Being this sick all of the time makes it impossible to be productive.  And the waning importance of BEING productive tells me that the changes I'm enduring in my life cannot be ignored.  And yet here I am weighing the benefits to risk ratio against a timeline I can't even see anymore.

Labs Post-Prednisone & Azathioprine

So looks like another medication is being added to the list--Lasix, a water pill.  This is needed to reduce the amount of EXCESSIVE water retention caused by the Prednisone.  I'm really glad to know about this addition, though it's going to be rough heading to the bathroom constantly.  Oh... but I'm SO very glad to do so!  You've NO idea.  But there is other news as well...

Liver enzymes: At the start my liver enzymes (which is NOT a liver function test) were elevated some 7-8 times that of normal, depending on which end of normal you do the math from.  Considered by the doctors I saw these were considered "significantly elevated."  Some people have way more elevation than that, but apparently research says that the actual numbers don't always indicate prognosis or how significant the disease is at the time of diagnosis.  But today, thankfully, I'm told that the one enzyme that is still elevated is only elevated by a little now and "Much better than where it was before." YAY!!  That's good news!

While I have to wait to get the labs actually in my hand to SEE them, I was also told that some tests came back showing mild muscle inflammation.  Not sure which test that was, but it doesn't really surprise me.  I have labs rechecked next Monday also in order to make sure the Azathioprine is helping, and not hurting things.

Good news, right!? :D  And hey, as long as those numbers go down and into the normal range, I can deal with some side effects from Azathioprine.  I mean, as we go along this journey the prednisone will be tapered... and THAT is DEFINITELY a good thing!  Not treating AIH means possible progression to cirrhosis.  Only thing statistics say about this that I don't like much is that 80% of people who go OFF medication to control AIH have a flare up within 1-2 years, and it often comes with the nasty addition of fibrosis or cirrhosis.  Yeah, I'm okay with medication inconveniences over death, thank you. ;)

So what's the deal with muscle inflammation?  I've no idea.  Guess that may be addressed next... we'll see.

How's that for some good news? :D

Keep Your Word When You Can

Notice the title: "Keep your word WHEN YOU CAN."  See, I'm not unreasonable.  I understand enough of human nature (like most of us) to know that NO ONE is perfect, and if anyone claims to be perfect... RUN LIKE HELL!  Still, one thing that sticks with me long-term is when people break their word because they had no intention of keeping their word to begin with.  Yeah, a big pet peeve of mine.. and here's why...

A person is only as good as their word; don't you agree?  But the HUMAN side of us also understands that there WILL be times when 'shit just happens,' and we have to recognize the difference between us wanting someone to keep their word.. and being a complete and total CONTROL FREAK.  Now that's another pet peeve of mine--control freaks.  But I'll get to the latter in a bit.  Right now, I need to get something off my chest.

Not unlike many, I have a long history of being subjected to those who frequently break their word.  It isn't always presented as a 'promise,' mind you, but it's still important to follow through when you can.  When you can.  Hey, I know all too well how things can change in the blink of an eye, and it stands to reason that when shit happens, things change.  We have to amend the course of our day and intentions and make room for whatever that unexpected change demands from us.  Right?  I mean, this is life on planet earth, folks, so we sometimes have to take a chill pill if something doesn't quite go our way.  Seriously.

In the past I've been held to an unbelievably rigid set of rules when it comes to relationships.  Needless to say, I've ended up with a couple of complete control freaks who attempted (with some success, unfortunately) to micromanage my life and time; totally fault, because I allowed it to happen.  But given that information, there is also the other side to this coin, and that's the real point.  At some point you have to at least make every effort to keep your word, even when it's inconvenient.

Last night, right before bed, I learned T broke his word to me on something and failed to tell me about it, failed to discuss it with me, and most importantly.. he didn't bring the problem to my attention so we could talk about the decision that HE would ultimately make.  The actual subject matter doesn't matter, trust me, so I'm focusing on the act itself, which is really the most important part.

Bottom line: if you're going to tell me you're going to do something, either DO IT or talk to me about why you can't, won't, etc.  How is that difficult?  It's really not.  In my case, I can completely understand when something doesn't happen the way I expect it to.. if people TALK to me about it!

Last night was a mess, a complete and total mess.  Feeling disrespected has become a part of my life again, and with it nastiness from the past.  I don't like the parallels, though this situation is really more about someone's utter emotional and moral laziness than actual cruelty.  No, the cruelty was the past situation, by far.

My past situation, as you guys know by now if you've read my other blogs, was very dark, very toxic, especially at the end.  I was held accountable for everything that went wrong in the relationship, and I was also held responsible for FIXING everything that was wrong in the relationship.  And according to him, "I" was what was wrong; who I am, who I want to be, how I lived, what I liked/disliked, and virtually EVERYTHING about me... was all wrong (according to him) and needed 'fixing.'  Without repeating how damaging that was to me, I will say that the experience opened my eyes to a few things, including (but not limited to) the unreasonable expectations of selfish people.

The unreasonable expectations of selfish people.

It took me a long time to say those words.  I don't like slapping labels or judgment on anyone, especially someone I love/d.  And I very much did love that person at the time.  I loved him so much I was blind to what was happening, to what and who he really was, and how utterly controlled I was during that time.  The idea that so much could be demanded of me never occurred to me in the beginning.  The idea that I would be shackled to everything I said never occurred to me.  The idea that there was NO ROOM for error, NO ROOM for life, NO ROOM for 'shit to happen' also never occurred to me.  I was utterly blinded by emotion.  And yet, I did everything in my power to agree to everything, and to push myself beyond what was reasonable in order to accommodate his every wish and command.

Over time, and as my health became worse, the narrative began to change, and my own personal story with it.  Sick, tired, in desperate need of rest, sleep, peace, tranquility.. I continued to do what was asked.  Over time, the toll on my body, mind, self-esteem, all of me really, was severe and debilitating at times.  And eventually... I didn't feel good at all.  My happiness and joy dulled and faded into nearly nothing.

The valuable lessons learned:

Love yourself enough to expect people to keep their word to you WHEN THEY CAN.
Love THEM enough to know they're human and shit happens sometimes.
Love...
Just love...

Last night was, in part, a by-product of recent history.  I'm not allowing myself to be controlled, either by force or by coercion.  And yes, I know the difference ALL too well; this is a good thing, btw.  I can recognize when people are doing their best, when they're trying, and I can also recognize when they're being total lazy assholes.  And guess what, ALL of us have our moments of being total lazy assholes.  Humility says... don't be so damn self-important that you think YOUR needs exceeds that of another.

Involve the other person in the dialogue when things change IF you have any warning that they will change.  Involve that other person in the dialogue when, even AFTER the fact, you can't keep your word for any reason.  But dammit, be freaking PATIENT, because honestly.. the world doesn't evolve just around you (using the word "You" loosely here, folks).

I recognized last night the extent to where the dialogue didn't include me, leaving me to once again feel disrespected to a large large degree.  I wasn't included when things changed, was told nothing at all.  In fact, the worst of it was that I know had "I" not brought the subject up... it wouldn't have been brought up at all.  And let's be clear, there was a timeline on this situation.

No, I'm not prepared to be unreasonable about this or any other thing, and I will still continue to make respect one of the most important factors in ANY relationship I have with ANYONE and everyone.  And it really has to go both ways.

I got it out of my system and spoke my mind.  T understands full well what happened and how NOT keeping his word or involving me in the dialogue when things change makes ALL the difference between treating me with respect or not.

It's a tiresome topic, really, and I'm not saying the actual topic of respect is tiresome.  Rather I am saying that I shouldn't have to always be asking for respect and pointing out the lack of it.  I also know that, like the past situation, if I keep quiet and say and do nothing for myself, then I'm doomed to allow the damage to continue, to lose my self-esteem and self-respect in the process.  And you know what?  I'm just not willing to go there again.

Keep your word when you can.

All Stressed Out

It was a difficult night last night to say the least.  As moods go, mine wasn't the greatest to begin with, and testing me by being disrespectful isn't a great way to end an otherwise peaceful evening.  And yet, this is exactly what T decided to do.  It was just poor judgment on his part, really, so I'm giving him a pass and trying to move beyond that one event.  In having to deal with unpleasantness that late in the evening the anxiety and stress carried itself with me and right into bed; NOT something that's conducive to sleep, much less GOOD sleep.  *sigh*

As much as the current events here can be trying at times, or even more than just trying, I'm often taken back to my recent past and how many times nighttime was wrought with more stress and anxiety than I've ever known.  It's a wash-over of sorts, all this carrying the past into the present.  I was told it's a form of PTSD, that certain experiences were actual emotional trauma that will resurface until I'm able to deal with them properly and un-do the damage.  Or if not to un-do, but rather to HEAL the damage.

During current stressful events the past comes in and waves like an annoying child DEMANDING attention right then and there.  I don't like this but know that the damage done prior is now a part of me, a part of my life.  Thing is, none of it's healed completely.

I suppose healing won't happen until I learn HOW to heal, because I knew THEN when it was happening that I couldn't do it on my own.  And right NOW.. I accept that same truth, which is that this is bigger than me and healing will take time, patience, help, and understanding that I can't get on my own.  But what do I do in the meantime?

Wait.  I just wait.  I'll wait it out, ride out what I can, roll with the punches when they come and try to get up the next day and start over.  It's all I can do.

See, what I want you guys to understand is that a narcissist's reach is far, their grip unbelievably strong.  This is why you need to know who and what you're dealing with, because getting out early before the damage is done is going to be the key to your healing faster and more completely than had you stayed in there.. hoping for the impossible, that being that the narcissist will see reason and change.  That person WILL NOT CHANGE.

If you know you're being emotionally abused, please get out.  If you can't bring yourself to leave, seek help so that you can make that choice and follow through.  Don't allow yourself to be changed, wrecked, and trampled underfoot by someone who only sees you as a supply source for their needs.  Listen to your instincts, and if you're in a new relationship.. PLEASE make sure you're able to assess your current situation and know the difference between normal crap people usually deal with in relationships, and those things that are red flags.  There is a difference between abusive and irritating, annoying, even disrespectful.  But if you don't have the information you need you may not be able to tell the difference.

I'm tired.  Very tired.  And pushing the past back down into the abyss is exhausting.  Time to chill out, watch tv or focus on something other than the crap I'm dealing with.

Til next time...

Random Thoughts at 3am

I had to make that meme.  I suppose it's just that one goofy part of me (sense of humor) that refuses to buckle under the health issues.  Yeah, I'm just ninja like that.

ANYHOO....Insomnia is a fickle bedfellow these days.  Incredibly unpredictable, I never quite know what it is I'm facing when I get into bed each night.  There's something triggering me to wake up when I go to bed, but I've yet to pinpoint exactly what that is.  Even nodding off on the sofa prior to going to bed doesn't guarantee I'll sleep once I get there, and in fact... it's almost a given now that I'm going to be waiting up, tossing and turning, until the wee hours of the night.  And what does this do besides keep me tired and exhausted?  For one, I get strange dreams, ones I really could've done without.  No, not nightmares... just dreams.  But still...

So it's 2am, 3am.. and stupid, random thoughts pop into my brain, which triggers more thinking, thinking, thinking... blah blah blah.  Damn.  Seriously.  WTH?  Most of it isn't even worth thinking about, I promise.

Okay, so falling back asleep this morning in hopes of getting about 5 hours I had a dream, and one that puzzles the crap out of me.  Well, I suppose most dreams don't make sense, right?  They're usually random babbling and broken intel of things we are either not dealing with, dealing with poorly, or unaware that we need to deal, you know, with those things.  But what about those dreams that aren't as chaotic and confusing?  What about the dreams that leave us thinking.. "Wow. That was so REAL!"  What about THOSE dreams?  You know the kind I'm talking about.

If your dream makes sense, what's the message?  That's the big question, isn't it?

I'm not sure what to make of my dream.  The content, which I'm not wanting to talk about, I think I understand, but my REACTION to it is yet another thing entirely.  It made me sad, seeing what I saw in the dream, though the actual thing happening wasn't a sad thing at all.  So.. wth gives?

Sorry to be vague about the dream itself, but some things are just TOO revealing of my own thoughts and feelings, feelings I'd rather keep to myself.  I'm trusting my instincts on this.  I may actually talk about this stuff in detail at some point, but I prefer to wait until I'm ready.  Hope you guys understand.

The other crazy thing that's happened today, post-dream, is that I feel a little anxious about my future.  It's like I'm being forced to assess what I want and how I plan to go about getting what I want, in terms of my future, happiness, health, and so on.  I don't have the luxury of being on auto-pilot, so introspection and continually assessing where I am and where I'm heading is really important.  T is more of an auto-pilot type, and it's not always easy for someone like me who's trying to take the wheel of my own life to be around someone who's just, well, letting life happen to him.  Not to say that his life is bad, because he's really chill and content most of the time.  I like to see where I'm heading, though, so laying back and riding the current isn't going to work for me right now.  Not sure it will ever work, to tell you the truth.

I wish I knew what my subconscious was trying to tell me.  I have a guess, but I don't LIKE that guess so am keeping an open mind and hoping I'm full of it. ;p

That's a lot of writing for someone who's as tired as I am.  Sheesh....

Why are You in My Face Again?

Far be it from me to stop anyone from having their own opinion and expressing them.  However, if you're spewing hate and rhetoric on my FB posts, then we really need to talk...

Lately I have one nemesis, and it's someone who touts being a conservative/republican but behaves like a total left-wing extremist.  Whatever.  I know this person in real life and have to interact with him and his wife on occasion due to my being a customer at their place of business.  So be it.  But there's a huge problem I'm having now with this guy vomiting ugly comments and replies on my FB posts... aimed at military members and veterans on my friends list.  THAT will NEVER EVER be okay.

So while the above person is just a representation for my point here, I think it's time I laid down the facts about what I think about taking a dump on other people's pages....

You don't have to [take a mind dump].  If you want to take a big ole steamy brain dump, do so on YOUR OWN PAGE.  Using the word "YOU" here loosely, as that person doesn't read my blogs.  This is not directed to anyone reading, just to be clear.  I'm basically speaking my mind about good old fashioned manners, etiquette, and just having some freaking class when it comes to dealing with others.  Not to say it won't ever get heated, because it's in our natures as human beings for that to occur.

Shit happens.  Or, "Feces Occur," if you will.

I read a lot that I don't agree with.  I see a lot I don't agree with.  Yes, there are things that offend me.  No, I don't usually react to them and simply go right on past to the next thing.  So why is it that doing the least confrontational thing is so lost on some?

Ugh.

Some folks need a brain enema...

Seriously.

Honesty has become a vulnerability.  People who speak their minds honesty are often faced with ridicule and contempt by those who have opposing views. I believe most of us get this and have experienced that ridicule first-hand.  While a valuable lesson, that ridicule and backlash, while it reminds us how we should choose our words carefully, we must always remember that honesty is STILL the best policy, and that lying by omission... is STILL lying.

A friend who reads all my blogs, and I mean every entry (bless her heart), sent me a message and said, "I don't know how you do it. Aren't you scared of haters bashing you?"  Well, no.. I'm not.  I refuse to allow haters and bullies to dictate how I think, behave, react or don't react to any given situation.  I mean, once you give away your power it's really hard to get it back.  It's best not to give your power to another to begin with.

I've relinquished my power to haters and bullies in my past.  My entire life, up until about 3 years ago, I learned to suppress my feelings, to bury anger deep, to hide the foundations of any feelings I had.  Not to say I wasn't emotional, because BOY was I ever.  I wore my emotions on my sleeve for the entire world to see.  But when it came down to recognizing for more than a second what created those emotions, and when it came down to standing up for myself, that's where everything fell apart, and it did so because I was taught early on that having those emotions.. was a bad thing.

I no longer think that, and because I no longer think that I FEEL more intensely those emotions I used to keep in check to the point of denial.  It's been a liberating process, being able to access feelings like that.  I don't have to apologize to anyone for having those feelings, and I reserve apologies now for when I HANDLE those feelings badly; thankfully this is seldom an issue.  So when someone writes me and is worried because I allowed the emotions and thoughts etc to flow freely on the pages here, or in my other blogs, I DO take into consideration what they're saying, but I also take into consideration that I've come a very long way to not only reach my feelings and access them more fully than before, but that it's MORE than OKAY to express them.

There is a danger to being honest.  There's a danger in speaking freely at times.  There's a risk that you won't please one person or another person, etc.  Not everyone is going to like what I'm saying.  But so what?  There will be those who DO, and it's with those people that the unspoken camaraderie is expressed and felt.  What I say, what I express, actually has helped people, and it's certainly helped me.  So I've no intention of changing this, just so everyone here is clear on where I stand.

I will accept the dangers of honesty and continue to be honest, sometimes bluntly, and I will take into consideration the edges honesty has by definition.  I'm not out to hurt anyone, and this is why I name NO names here as to whom I'm speaking about.. IF I'm speaking about someone else.  It occurs to me that having to say this means I'm still aware, very aware, of the risks I take.  But it doesn't matter.. I'm not here to write fiction or make things look better or worse than they actually are.

I'm going to be myself, haters and bullies be-damned.  No one should give up pieces of themselves for others to devour, and that's exactly what you do when you censor your words, thoughts, and feelings in a place or forum where you're there to speak your mind.  People can choose to read or not read, listen or not listen.  Actions are a choice.

So to my friend, though we've spoken about this at length--I hear you.  And I'm okay.  I'm okay with what any hater or bully thinks about me, because I don't answer to them.  And.. you shouldn't either.

It begins the same every day...

....And it ends pretty much the same way.
Predictability to this degree is less than optimal for a full life.  Maybe that sounds a bit over-the-top, but it's the truth just the same.  And let's be clear here, I'm not speaking of the predictability that's needed in most important circumstances, but the kind that you recognize and expect because of history.  If you have a predictable outcome, what's the incentive to do anything any differently?

My attempts to affect change have fallen short of anything I would ever dare call success.  When problems or difficulty arises and the outcome is always the same, redirecting my approach to the issue just makes perfect sense.  Let's try something different; this is what I tell myself, and it's what I do, and somehow it still seems to make little to no difference whatsoever.  So then, what's the solution?

Maybe it's time I implement a little indifference myself, invoke the goddess ignora as it were and use my resources, whatever they may be at the time, to implement the change I want in my life.  Yeah, sure.. I know that sounds like the better place to have started, but there's this little thing called 'communication' that always seems to get in the way.

Will it FEEL different if I do something new?

Has it to-date, you know, FELT different?  No.  Not really.  And why would it matter what something FEELS like?  Because FEELING is everything.  FEELING is what stops us, encourages us, demands, suggests, and invokes an action or reaction to any inner or outside stimulus.  Get your mind out of the gutter. ;)  In all seriousness, unless you're a complete sociopath who feels nothing at all, this should make sense.

Okay, so what is it I FEEL then?  Anxiety.  Mild anger.  Disappointment.  Bewilderment, and... wait.  Is this what I'm really referring to when I say FEELING?  Maybe not, because that list is really more the EFFECTS of those feelings than the actual feelings themselves.  Well damn... that just got complicated, didn't it?

So what I'm basically dealing with here is changing MY behavior and the way I look at things so as not to have to constantly fight for what's right, or to be heard, or to even be respected.  Respect will still be a HUGE deal for me, of course, because that's part of what and who I am.  But I'm not going to allow disrespect to alter how I FEEL---as just one example.

I realized last night that I'm still in that place where I allow my health and my body to be torn down by the treatment of another towards me.  I can't keep doing that if I want to heal, to be healthy.  I just cannot allow that to continue.

The next step is... to break free of those chains that bind me, the ones I was shackled with as a child, carried into adulthood, and allowed to be manipulated by someone I'm with.

....I've got the 'what,' and now I need the 'how.'  That's at least something.

It Was Real the Entire Time, and You Didn't Believe Me

This is basically a PART II to the previous entry, just in case you're confused as to where I'm going with this.  This week, particularly today, damage from my past has surfaced, and partly due to seeing my life in a different way post-diagnosis (Autoimmune Hepatitis).  My recent diagnosis isn't the only reason, but it's a huge part of it for sure.  You see, in my last relationship I wasn't believed when I said I was sick, that I was SO tired, that my whole body hurt, that I really just didn't feel good at all.  I wasn't believed, and I was scoffed at, mocked, and ridiculed for having the audacity to talk about my failing health, even blamed for it happening.

It began with a few issues with my heart, some of it I'd been dealing with my entire life.  Mitral Valve Prolaps, for example, and progressed to a degree that I now have moderate-severe regurgitation that has to be monitored now every 6 months with cardiac echo, and it was confirmed that the regurgitation has worsened even from a year ago via cardiac catheterization, where it was then still at the moderate level.  Now they monitor for any changes that may indicate I will need a new valve.  I was also diagnosed with Diastolic Dysfunction, Grade II.  Even my Hepatologist said, "You realize that's a form of heart failure, right?"  I nodded my head and acknowledged that, yes, I did know.

In 2013, in January I was hospitalized with chest pain, where they discovered that I had mild pulmonary hypertension and that the regurgitation had progressed to the moderate stage.

In 2013, in March I had a TIA (Transient Ischemic Attack, aka Mini Stroke), and then they had no clue it was due to one or all three of the heart arrhythmias I had, something that wouldn't be found until January 2013 after I'd gotten insurance.  I knew of one heart rhythm disorder, but I didn't know what it was called.  I'd had it since I was a kid, though.  It's called SVT or Supraventricular Tachycardia.  They also found Atrial Fibrillation (AFib), which they say caused my TIA, and Atrial Flutter, which also could've played a role in the TIA.  All of them could play a role, so I was told.

In July 2014 I had Cardiac Catheter Ablation for the arrhythmias and have remained mostly arrhythmia free, with the exception of a few Atrial Runs and PACs.

My symptoms over the last few years were often debilitating, with terrible pain in muscles, joints, chest, issuing and worsening weakness in body, and the feeling of just being 'sick' all of the time.  On occasion, and for a short time I would come out of that and feel nearly normal.  Then out of the blue it would hit again and take me out at the knees.  I didn't have health insurance so didn't run to the doctor for anything unless I was forced.  I had no idea at the time what was happening...

I knew something was very wrong, knew that the way I felt wasn't normal at all and more like what maybe a 90 yr old would feel like if they were in bad health.  No, seriously.  Not kidding about that.  But while I was in that other relationship I wasn't believed, was scoffed at for having the gall to mention how bad I felt, etc.  I was under enormous stress from that situation, which made things far worse than they really needed to be.

And yes, I was told it was in my head, 'psychosomatic' even, as if anyone in that situation had any degree to make a diagnosis.  My symptoms were waved away, dismissed, and ignored.  I was ridiculed and made to feel unwanted because I was 'sick' a lot of the time, and yet I wasn't allowed to take the time I needed to take care of myself, to sleep, to eat without anxiety or guilt, to just relax into my life the way others are able.

On that side of the fence in that relationship I was enduring a lot of criticism, and I'm sitting here today wondering how people, anyone, especially someone who claimed to love me.. could do that, to not be one of my advocates, a person who lifts me rather than tears me down.

The finding of AIH recently has opened old wounds, and I'm angry that I was treated like shit because I felt bad so much of the time, told that I wasn't any fun, couldn't keep up, wasn't worthy of his time, attention or love, not even worthy of respect because... I was harshing his mellow, so to speak.  How dare I be sick when it wasn't any fun for him?  Yeah, it was actually like that.

I'm sad too, though.  I'm sad because then I believed the lies, the confessions of love that wavered and didn't really ring true now that I look back.  I was left to feel inferior, like a burden because I couldn't put a name to what was wrong with me.  To tell you the truth, even had I known it wouldn't have mattered to him at all.  He couldn't be with someone who was sick, even if it were temporary.  Okay, so I really dodged a bullet on that one, I agree completely.  But did it HAVE to be so bad?  WHO treats someone like that anyway?  Rhetorical question, of course.

The wounds have reopened.  I'm sure it's for a reason, because even now I can view this from another perspective.  But it's stirring the gears of that damaging machine again, this I can tell you.  And I'm pissed off, I am, but I can view that as a positive in that here I am making my way through the stages of grief again, and maybe that this time I'll be mad enough to get right through to the end and stay in the mode of... acceptance.

But I have to tell you what it's like to have this knowledge of my health now while looking back in the recent past at the few who decided that I was either lying, or that it was all in my head.  I'm disgusted as I think about that.  I'm not impressed with the lack of empathy, how the few decided they were to put on their little doctor hats and play hospital with MY health.

Gas lighting, the dangerous way...

It has occurred to me, even after much discussion about gas lighting, that it was actually being used on me with regards to my own health, my body, and in ways that was absolutely NOT in my best interest.  Well, gaslighting is never in anyone's best interest but for the narcissist who uses that tactic, which most of them do.

I was ridiculed and scolded repeatedly, made to doubt, to feel shame about my talking about just how bad I was feeling, physically.  I was told and told it was in my head, that it was 'psychosomatic,' that a 'psychic' was consulted who said the same thing, that it was all psychosomatic and in my head.  I was told that and told that, and those burnt offerings were tossed upon me at every turn.  The result was intense stress and anxiety, self doubt turning to self-hate as I began to believe what I was told.

It was all wrong.  He was wrong.  Time and time again he was wrong, and those involved in the situation, in MY private life were just wrong.  And even now it makes me angry, though I wasn't angry at the time.  In fact, I couldn't even feel anger and hadn't for some time; another issue my therapist was trying to help me with.

They were all so very wrong.

Today as I feel the AIH symptoms ebbing, as I feel the side effects of the serious medications to suppress my immune system come on board, as I go for weekly blood draws to assess what the medications are doing to my body, as I look at the future and tell myself this is going to totally stop my liver from developing cirrhosis, as I look at how my life is radically different, how my future is uncertain, and look back at how bad I was made to feel over things I couldn't control... I'm both angry and sad.  And the little voice in my head just says.. It was real.  It IS real.

I wonder how differently things would have been for me had I not had the additional stress, anxiety, and resulting depression?  How different would things be right now with my health had I not been put under SO MUCH unnecessary scrutiny, judgement, and ridicule.  Would the AIH have been in remission and stayed?  Would it have come back as badly as it had?  Would I have had that TIA in less than a week after the big fight with my ex?

Being treated better wouldn't have cured the AIH, and it may have just prolonged the flare that would eventually have brought about a diagnosis.  But stress and anxiety DOES make AI disease flare, so it's best to be avoided when possible.  It would've been nice to have had that person on my side, to have been comforting rather than hateful, rather than judging me for being sick in the first place, maybe to have had compassion, enough that inspired concern rather than ire.  Maybe the extraordinary stress from the fight in April wouldn't have happened had there not been this need in him to hurt me repeatedly... I don't know.

What I do know is that I look back and feel disgust for a few people who decided that they knew my body, my health better than I did.

I'll get over the anger I feel right now, the disappointment, the confusion that seeps in through the cracks despite my best effort...

Today is just not that day, I guess.