Having set the stage for my life once again I'm faced with difficult decisions, and in the midst of a health crisis of sorts. Which reminds me, I didn't mention in my last entry that I crashed pretty hard while tapering down the prednisone, called my GI doctor.. who had me step up the dosage back to 30mg/day from my lowest taper.. which was 10mg. ALL those awful symptoms returned with a vengeance, and other GI issues became much worse. I couldn't handle it anymore. So my appointment on the 28th has been moved to Monday, tomorrow, the 10th, and he wants me to be there at 7:15am so I can be the first patient. There was mention of possibly adding Imuran, the a immunosuppressant. We'll see what he says when I get there. But I'll tell you, that first night he told me to up the dosage again.. I did to 25mg (so as not to take too high of a dose at bedtime) and woke feeling better the next morning. And yesterday and today.. I can really tell the difference. Doc says that knowing where symptoms begin returning tells him where my maintenance dose will be.
So there's that.
When I felt as if my body were made of lead the other day, as my eyes and face began swelling again, as I felt that hint of health fading rapidly, I realized what trouble I was really in. I mean, when you're at the whim of whatever ails your body to that degree every move you make becomes a reality check. Every single decision I make is a reality check. My body reminds me every single day that I have to make my decisions wisely and with my own best interests in mind.
That's something that's long overdue, btw.
So much still going on with my health, and the unresolved and worsening symptoms will, or should be addressed tomorrow morning at my appointment. Eventually I will have a handle on this thing, and we're at least finally getting to the bottom of what's wrong. Armed with that knowledge I can begin to take control of my life again, and in a way that promotes a healthier, happier me.
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