Revelations Post-Consumption....

NOTE:  I apologize if the audio isn't quite up to par, and I'm looking into a decent mic to cut down on the static heard.

"Post-Consumption" and what I mean by that.  AFTER a malignant narcissist chews you up and spits you out (narcissistic supply).  Plainly, put.

Risk for Redemption.

I played a bit with the idea of composing an audio/vid for myself, just something to remind me that there was, in fact, a time when I felt like a normal human being, when pain was minimal and sometimes absent, when I could behave normally, when restrictions of body (and now spirit and emotion) hadn't taken hold.  I know I used to feel better and actually participate in L I F E.  But for the life of me, my mind edits at will and separates the now from the then, the me I became and the me I once was.  So to keep it all in perspective... I made an audio movie with pics ranging from 8 months ago to 4 years ago, before this big crash in everything that is 'my life' and 'me.'

I was hesitant to upload it here (still am), but a friend of mine said "Do it.  Put it ALL out there, and to hell with what anyone thinks!"  It feels odd to see my own face all over this video, but... it's mostly for me anyway, something I can look at and recall that L I F E was there in me, and maybe.. just maybe... I will start believing again.  enough of the typing... arm aches horribly.

The compilation set as a reminder of where I once was in my L I F E and H E A L T H, remembering a healthier, happier me... taking a risk for redemption of myself, an apology to tell the woman I've become.... 'I'm so sorry I let you down."

Controlled Crash PART I.

I've not posted in a while, I know.  Some days are just too hard to think, much less talk about what's happening.  Health issues are still unresolved so I'm living in hell for the most part.  Bad thing is, part of that hell, one of the biggest part of that hell isn't my failing health but who I'm with.  Today I'm choosing to be blunt.  It's about time.

I've spent the better part of the morning, to make a long story short as possible, doing a research--a LOT of research.  Doesn't even matter what the subject matter is (not health this time).  What IS important and what absolutely matters in every way is the complete disconnection from T... until I make up my own mind about something and choose to act upon it.  It's part of being a grown-up, so I hear.  You know, making informed decisions on issues that affect one's life. ((sarcasm))

I put in hours worth of research and made my decision after days of talking to people who're experts on the subject, reading, and watching informative videos.  It's not like I made my decision rashly or without forethought.  By the time I put in the footwork and came to my decision---it was with a 100% certainty.  Personally, I have no doubts about my decision at all.

During the stages of research and educating myself on the subject.. T was off in la-la-land, where he seems to spend most of his time (like many average men).  Be it diving headlong into a FB fixation that eats up every spare moment, or staring mindlessly at a screen watching some movie or series or whatever.  Then there's all the other extraneous things and the important things.  When it's all said and done, honestly, I'm left with wondering if I need to make an appointment with him just to have a conversation about important issues.  Thing is--I'm not even remotely the time to do that.  Oh, I USED to be the girl who would wait like an idiot for Mr. Man to have the time for me, but I don't indulge that anymore.

There just isn't any time.  Right?  Not exactly...

It's AFTER I put in the time and effort to research something, AFTER I make my decision based on that research and time... when he decides to be a part of the process and tries to TELL me how things will go, how it will happen (or not happen), and goes on to put time in to finding an alternative to my decision.  What.  The.  Actual.  Hell?

I'm sorry, but if you're too busy to not be a part of the process, you're sure as hell not going to be a part of the decision.  Period.  You can't just waltz in and take over AFTER the fact!

There's a certain intelligence that comes with recognizing and working with your limitations, knowing when to stop or take a different course.  I know my limitations well and am well informed on how to either get around or overcome them.  If you can't identify your limitations they will rule you and your life.

However, there are those who create limitations and full-on embrace them.  The most common, and the ones that irritate the hell out of me the most are the following:

I don't know.
I can't.
We'll see.
Maybe.
AND EVERYONE'S FAVORITE... ((sarcasm again))
If I have time.

Sometimes people don't know or can't do something.  I get that.  But when the question that precedes those answers is "Why"... I start to have a problem with that.  "Why are you being an asshole?"  "I don't know."  You see, the question is what makes those answers so infuriating, not so much the answers themselves.. However, I've always ALWAYS been one to say "I don't know BUT I'LL FIND OUT" if there's any way I can.

So when T attempts to crawl from the shadows and override my decisions and I ask "WHY?"... I honestly don't want to hear "I don't know."  And if I hear "I can't," I would like also to know... "WHY?"

It's not like I want to chat like a couple of old ladies over tea.  I'm talking about important issues that need discussing OR dealing with me having to make the decisions on my own due to lack of participation. Again, you can't just sashay in later after everything's been said and done and a decision's been made!

It's said that control freaks are generally very lazy people, that their own lives are usually badly out of sorts and they seek to control others in order to FEEL "In control."  I'm not talking about those who try to control their own lives, those who will listen to advice from others.  Even if that person doesn't TAKE your advice, they at least listen, and THAT is a fundamental difference between an actual control freak and those who may be a bit OCD in their own lives.  I can be said that the real control freak will be the one RESISTING ANY advice from you and INSISTING you take their advice.. no matter what, even if it's a very bad choice for you.

I'll end this here, but I'll try to compose PART II in a few minutes....

Narcissist Much?

Narcissists.  I've not talked about this subject in some time.  The unfortunate truth is that I still struggle to get past the damage that was done and find it interfering even to this day with day to day life.  I had a good head start in the right direction with a therapist who helped me identify with what I was dealing with in a relationship, but that head start was only just that.  Sadly, the past is catching up to me as I feel myself and my life slowing due to illness.  I can no longer emotionally run or sprint to stay ahead of what still lurks behind in my past.

I won't go into the whole narcissist explanation again, and frankly I'm not well enough to deal with revisiting my experiences.  There are tons of articles and videos about the subject if you need more information.  Not that I won't visit or talk about this topic again, because I will.  Just not right now, not today.

My point here today is to warn anyone in a relationship with a narcissist that if they don't get out soon.. the effects of the experiences will be with you and possibly forever.  Your time and life, who you are as a person is precious and more fragile than you'd ever realize without that smack up side your head.  Not all needs that smack, but... I certainly did, and I regret very much NEEDING that to make me do the right thing and protect myself, to admit that I'm worth protecting.

As much as I avoid it I sometimes look back and feel such regret that I allowed myself to be emotionally beaten to a pulp.  Some may say I shouldn't 'go there,' that I shouldn't revisit such experiences, but to that I would have to say---it's important that I don't forget.  Whatever compelled me to abandon myself that way, the HORRIBLE self-esteem created by a strange childhood life experiences left me more vulnerable than I could've imagined.  My vulnerability to certain emotionally dangerous elements did a tremendous amount of damage, leaving me to accept, NEEDING to accept the fact that I was completely unprepared to defend myself.

My health began to go downhill at the very start of my experience.  Dealing with the insidious nature of another's narcissistic personality was draining, frightening, confusing, bewildering, and it left me absolutely questioning who I am.  That weakened state took hold, and fed by chronic stress and anxiety grew and eroded my health.  It's almost impossible to turn this off once it takes hold and takes control over you.  Just don't let it happen.  I wish I hadn't.

Even today I have to fight with the damage the experience left inside, the razor-sharp doubt that cuts strategically away at my happiness and health.  Many times I'm successful with shoving it all into the bowels of my subconscious.... but it's there, always there, always watching and waiting for me to let my guard down.

The message is to myself and to you.  If you deal with it now or have in the past... love yourself more than you loved that other person.  Love yourself more than you fear that other person.  Love yourself enough to get out and get help, because there's nothing more important than protecting yourself and your health.

I'm hurting too much to keep typing, so.... if you're curious or unsure if you're dealing with or living with a narcissist... don't assume you think you can recognize it even if your face to face with it.  Read about it, and watch the numerous videos out there about this subject.

One suggestion: Read about and watch videos regarding "Gaslighting," and if you recognize it as something being done to you---get out fast!

The Similarities of Day to Day Life.

Or shall we call it "A life of perpetual sameness"?  Either way, I'm going to make damn sure I change this.  I have to.

I've posted enough here for you guys to know where I am at the moment.  Dealing with communication and respect issues from T, issues that make themselves known every day and every night without fail.  You also know by now that my tolerance for this is extremely thin, verging on non-existent.  Notwithstanding innocent goof and human blunders, somewhere in the chaos one has to actually SEE the damage being done.  "I" see the damage because I'm a recipient of most of it, but T sits quietly on the river "Denial" and refuses to move.  Ok.  Whatever.

He doesn't like my bluntness and doesn't want me to say aloud the truth that threatens not only to completely destroy this relationship, but the truth that's destroying my peace of mind, health, and happiness.  He's in blissful ignorance, so I don't have any choice other than to say exactly what's on my mind.

When I'm trying to open a discussion, when I need to point out behaviors in someone that TRULY need addressing, I use non-combative phrases.  I speak of how I feel, what the harmful behavior is, but I don't point fingers, name-call, label, etc., because that approach causes damage as well.  I know how to communicate, as long as people allow me to communicate.

Repeatedly disrespecting me is a huge deal and would be for pretty much anyone.  Not allowing anyone to disrespect me was a lesson only recently learned, so I'm still a little awkward with it and finding my balance and strength when approaching the subject.  I'm getting there.  Now, in the process I've become fairly blunt when I've taken all I can, and all PC is out the window.  I speak my mind now while doing my best to preserve the other person's (in this case T) self-esteem.  I've no interest in becoming what I most despise so won't allow myself to go there.

T believes that when I point out what he does that hurts, offends, and disrespects me.. that it's a form of disrespect and that I shouldn't say anything at all.  But I assure you, that approach NEVER works and is, in fact, quite harmful to relationships and the individuals.  If I shove down my feelings, ignore the disrespect, and take the punches in silence... I will eventually resent that person, and that person right now is T.  No matter how I try to explain this--he doesn't get it and shows no indication of trying to understand or stop the disrespectful behavior.

Again, as I've said many times before, I'm not trying to make T out as a bad guy or to demonize him. He's NOT a bad guy--he's just blind to the things he does and doesn't do that greatly and adversely affect me in so many ways.  I hang in there for the obvious reasons, and I do so because I hold hope very close, hope that he'll see what he's doing so it can be stopped.

I may be a bit foolish for relying on hope this way given my past experiences and hope-filled failures.  But there's no reason NOT to hope.  In fact, hope is the great buffer of all things, isn't it?  Life tends to slip apart when hope is lost.

Damage control: There's been a lot of this with most being unsuccessful.  And I'm no stranger to damage control given past relationships that left me holding the weight of fixing everything.  One person CANNOT fix a relationship, nor can one person break it.  If a relationship is going bad, guaranteed there are TWO people at fault, even if it's the behavior of one and the acceptance of that behavior by the other.  It takes two people to break a relationship and two to repair it; an absolute truth.

Sometimes there are victims, yes, but 'most' victims are willing.  Meaning, when you have a way out of a bad situation and don't get on board with preparing things, and if you stay and suffer the damaging consequences.. then you've willingly participated in that damage.

As for me, I was a willing victim.  I played the martyr in love more times than I like to admit.  My role in a past relationship which did a LOT of damage to my self-esteem, body, etc. I take full responsibility for.  I remained in a bad situation, and though I believed that he and I could fix things I refused to see and acknowledge (for far too long) that the weight of that burden was planted fully on me.  I should've left at the first sign of serious problems.

I should have bailed when the relationship began changing the way I saw myself, how I thought of myself, when it began to depress me and fill my entire world with anxiety.  I should have been my own best friend and stood up for ME.  Instead, I did everything I possibly could to change into the distorted version he wished me to become.  It doesn't take a genius to understand that my acceptance of abuses, be they emotional or physical, would nearly destroy me as a person; I get it NOW, but I didn't get it THEN, not until it was too late and the damage was done.

I had to forgive myself more than the other person, because it was ME who let myself down.  I didn't have my own back, and I allowed everything till nearly the end.  It wasn't until I had a TIA and ended up in the hospital (very shortly after the last blow up) did I realize to what degree I'd been beaten up inside and how it had shattered me.

In the hospital the doctors asked about my level of stress, had I been dealing with major life changes such as a death in the family, financial hardship, and/or a breakup.  That was the first time the lightbulb went on and I began to introspect as I lay in that hospital bed with nothing but the hum of the heater to interfere with what came to me.  The realization was harsh, brazen, and shattering in its truth.  I had to get out of the relationship; I had to let go; and I had to do it to save my life.

This wasn't a comfortable awareness when it came blazing out of the deep recesses in which unpleasant things go to smolder.  But there was nothing I could do, really, but allow it into the light and face what it was, what I'd always known but refused to acknowledge.

So the burning question for most people at this point, after hearing/reading about my experience, the question everyone I knew at the time had is: Why the hell did I stay so long?  I stayed because I was in love with him.  Isn't that why any of us stay in bad or toxic relationships, because of our feelings and our sometimes misguided hopes that he/she will change?

I wouldn't find out until much later, until it was far too late and the damage was taking over my life and destroying happiness, that the person I fell in love with didn't really exist.  If you've read my blogs for a while you've heard me say this, and that's because the realization that I fell in love with a lie is profound and one I struggle with today for obvious reasons: You can't say goodbye to someone who doesn't exist.

The mask slipped and I discovered the truth beneath.

To this day everything about me struggles to reconcile who I thought I loved with who I was actually dealing with.

I believe that this problem of irreconcilable truths, for me, is fanning the flames of what's happening in the current relationship.  While I knew this was a possibility there wasn't any reasonable way to prepare for the experience itself.  On one hand being protective is necessary, but on the other hand.. always being poised in defense isn't a good idea either.

This emotional struggle could end with closure; something I will never have.  I can't say goodbye to someone who never existed, now can I?

Yeah... and therein lies the biggest problem of all.  This fight, this struggle permeates day to day life.  T's disrespect, whether purposeful or accidental permeates day to day life.  Health problems worsen and take over day to day life.  There seems to be no end to this....

What Will it Take?

The daily battle of ripping myself out of the 'homesick' feelings is exhausting.  It's not like every waking minute is filled with dreams of how life was a couple of years ago when I lived in Mobile, when it was just myself and my pets.  And don't for a minute think that was a lonely life.  I mean, sure, it was a little lonely at times, but it was peaceful having only myself to contend with and not another soul to judge, make me feel bad, make me question myself, and the only sources of stress and anxiety were actual NORMAL stressors that most people have to deal with.  Life--was just simpler then.

I don't for a minute regret this life I'm in now.  Well, maybe I have a couple of times.  But I know that there are good things that came from my choices to be with T, to live HERE instead of where I really consider 'home' (Mobile, AL).  I get where I was and where I am and how I got here.  I feel the appreciation for the things that make life better.  I also understand what it is about this life that really isn't at all good for me.  In fact, I'm extremely clear on what's not working for me here.

My hands are tied at the moment by Autoimmune disease(s) and the effects of the medications that are necessary for remission.  There's a reason I'm here, right now, exactly where I am and under what circumstances.  Though I don't pretend to understand it all, I know that whatever my purpose is here is somehow necessary.  It's the only thing I can say on that matter.  In the great scheme of things, as the situation is what it is, a very cautious part of me is watching how much stress my body and spirit can handle and looking for signs that things need to change, and change immediately.  No reason to be blind, because it could cost me everything.  And I mean everything.

When I look at my surroundings now I'm not sure how I feel.  I like the house, the location, and the view is spectacular.  But the biggest influence in my surroundings is T, and he's chronically unplugged, indifferent, and rarely can see, hear, interact or connect with anything outside of his own skin.  That's a big problem for me.  I'm down to disconnecting entirely so I have the freedom to take care of myself above and beyond him.  He's healthy and grown and fully capable of taking care of himself.  He's off in his own world most of the time anyway.

I'm going to have to call it quits here for now.  My body is urging me to step away from the computer,  that it's past time to stop and rest.  Oh, but I've learned the hard way that ignoring those signals is a VERY bad idea.

Finding Me

I'm not lost.  I'm not invisible, though I FEEL that way most of the time.  I know who I am, for the most part.  I can look at my life objectively and see where I've gone terribly wrong.  I have a sense now of protecting my health, my sanity, my life, and I won't allow anyone to derail that.  I've come a very, very long way.

I have a purpose just like any other, and a couple of relationship experiences has taught me that I can't lose sight of the fact that I don't need anyone else telling me I'm worthwhile.  Selfish people will spend a LOT of time telling you you're not worthwhile, not worth their time, effort, love.  And why do we allow this?  The answer to that is different for every person, but the one thing that we all have in common is the TYPE person we chose to bring into our lives.

I'm right here, right now, alive and feeling; I've always been here.  Though a couple of people I had in my life tried frantically to diminish who and what I am, and they nearly succeeded, they FAILED.  I know this because I was able to finally walk away from the situation and felt that terrible, heavy weight lift as I did so.  Even in the absence of real closure I know I saved myself by steering clear.

This situation I'm in now with my health is a big uncertainty in my life and I have to accept that.  I have no idea, going forward, what to expect and have to take things one day at a time, literally.  What little energy I have can't be spent on yet another person who doesn't have my best interests at heart or in mind.  Now, on the surface that may sound selfish, but since my health and life are at stake.. I can't leave anything to chance, nor can I just pour my life and future into someone else the way I had in the past.  There's nothing selfish about taking care of myself, and it's taken me a couple of years to actually believe this.

I don't care if anyone thinks I'm selfish right now.  I do all I can for others as much as my energy and health will allow.  The people who love me understand.  And the people, past and present, who don't love me don't understand at all and stand in judgment.  Thankfully, the numbers in that particular group are ridiculously small.

This is not the time for me to turn my focus away from the very real AI disease(s) I'm dealing with.  Both the one confirmed and the one yet-to-be-confirmed are very serious and require life-long treatment.  No one has given me a prognosis, because there's really no way to at this point.  No one can guarantee me anything, and what they're left with is telling me the possibilities as far as what my life expectancy is WITH and WITHOUT treatment.  I've started treatment, as you guys know.  I've begun that journey, but it's going a lot slower than anticipated.  Still, my odds with treatment are far better than without.  Even knowing THAT I'm given NO guarantees of what will be a year from now, 5 years from now, or even next month.

All I can do is take very good care of myself and avoid stress and anxiety.  And herein lies the biggest problem--my life with T, my past that haunts me... all bring stress and anxiety in like a flood.  Not 24/7.. but enough to make each day just one more opportunity to work my way past that.

Finding myself sounds so damn cliche, and so much so that I cringe just thinking those words.  But it's something I can't ignore.  I'm here, but I don't recognize the person in the mirror, the sick person with the dark circles under the eyes, etc.  It's okay, though.  I know and understand the drill.  That sick person in the mirror needs TLC, patience, understanding, and love.  I'm really pretty much the only one that can provide that.  It's still me in there, looking back...


It's still me in there looking back....

I've Had it...

Trust me when I say... it's taken me from approximately 7:20am to 10:37am JUST to calm down enough to write.  Waking to indifference each day is grating on my nerves and sucking the life out of my life.  I'm not in the greatest of moods at the moment, and I'm not about to pretend I am.  It's been one HELL of a morning... let's just start there, shall we?

Okay, so all of my life I've believed that the old saying "Anything worth doing is worth doing RIGHT" is a damn good foundation for anyone's life.  Half-Assing ANYTHING reveals a lot about a person.  And by 'half-assing" I mean not putting everything you have into what you're doing.  Not to say your "everything" may not be on the same level every day, but putting in 100% of what you can is all anyone can really ask.  And why not?  Why would anyone do anything less than 100%?  When you take shortcuts you leave someone else to make up the difference in distance you weren't willing to go.

NOTE:  As always, unless I'm writing something aimed at someone in particular... the word "You" is used loosely and not meant to point fingers at anyone here.

My health is bad--I've spoken of this a lot in my blogs.  Dealing with one confirmed AI disease (AIH) and going through the paces of confirming a second means.. I'm NOT in remission.  I won't BE in remission for a very long time (I'm told).  The blood work COULD very well improve, the numbers will improve and possibly quickly, but 'remission' is more than numbers.  I won't go into all of that, but suffice it to say every single day is a battle to get through.  So here I am living with someone who, by nature, does ONLY what he can get away with and not a scintilla more.  What does this mean?  It means I have to take up the slack.  I not only have to do what I need and have to do, but I have to take up the slack from what he only does PART-WAY.

Half-Assers are a HUGE pet peeve of mine!

Look, I realize there will be days, times, and situations where you may have to take a short cut or do what you can in that moment.  But I also know that there are things that HAVE to be done correctly, thoroughly.  I mean, you can only short-cut your way through things until you end up with a completely and totally chaotic mess that SOMEONE ELSE will ultimately have to deal with.  Why the hell would you do this to someone, especially someone you claim to "love"?

This morning, like so many mornings (every morning!) I found myself forcing my way through cleaning up after T.  And I mean, cleaning up as in it takes me some 45-hour JUST to pick up the slack of his half-assed whatever.  Have I spoken to him about this?  Of course I have, and 2 years ago, when it really began, I was very calm, loving, and discussed the matter with him in hopes he would see what he was doing.  I mean, he's a grown up, and I'm not his mom.  He can pick up after himself, because he's no Ward Cleaver and doesn't treat me like Joan.  The family of the 1950's and 1960's are GONE.  Marriage and relationships aren't centered around women being in servitude.

Now, women who are treated with respect, treated kindly, appreciated.. will do almost anything for their guys.  It's how we're wired.  We're wired to be caretakers, caregivers, at least most of us.  However, when taken advantage of we often will begin to back off from all those things we once did easily, eagerly, and happily.  When taken for granted... we don't see any reason to continue giving when there's only taking from the other side.

And please, don't confuse this 'give and take' with material things or money, etc.  Because those things don't bring happiness, not ever.  What I'm talking about here is doing one's part in the relationship without placing the blinders on and thinking it's really just all about the other person doing all the work.

I've been in a relationship where everything was dumped solely on my shoulders.  People who know me, who pay attention, find out quickly that I can't be bought.  You can't buy your way out of unhappiness.  You just can't.  Being poor and happy is FAR FAR superior than being well-off and miserable.  Money can't get rid of unhappiness.. I really can't stress that enough.

Doing your part, that's what it's about.  Not placing necessary pressure or expectations on the other person is what it's about.  Respecting the other person's time is what it's about.  And soooooo much more, or course.  But when it comes to half-assing your way through chores because you know the other person will take up the slack for you... that's a sure-fire way to turn that person off, long-term.  And good damn luck getting them to be turned on again.

Being taken advantage of is not good foreplay.
Being taken for granted is not good foreplay.
Doing and not doing things that make the other person's life more difficult.. is not good foreplay.
Being overtly, blatantly lazy isn't sexy.
Indifference isn't sexy.
Ignoring someone isn't sexy.
Not respecting the other person's space, time, and needs isn't sexy, nor is it good foreplay.
Being mean, hateful, abusive.. isn't sexy, and it makes for LOUSY foreplay.

You treat me like shit, I'm going to shut down.
You abuse me, mentally, verbally, or physically.. and I'm going to shut down and NOT be into you.
Take me for granted and I'll stop doing things for you.

It's taken me years to get to this point, and I've been a welcome mat for a couple of people and won't ever allow myself to do that again.  I don't need anyone THAT much.  If I'm treated badly, eventually I won't feel anything at all for you, and you're going to find out that you really just can't un-ring that bell.

You can't buy me or my love.  I'm not for sale.  If you do something you claim is out of kindness or whatever, and you use it against me later.. you've given your true motive away!  Once I SEE you, what and who you REALLY are, I won't be able to see that 'other' person ever again.  Once you blow it, you blow it.

T is lucky in that there's still about 2% hope here.  This morning was just about the final straw, but I fought and worked my way past it, and I'm telling you it was DIFFICULT!  He knew, too.  He knew the moment I pointed out to him what he'd done.  He tried to backpedal, tried to reassure himself that he'd not blown it VIA me.  But what was done was done, and the disingenuous nature of what he did wasn't lost on me at all, and it broke something inside and change, again, the way I see him and feel about him.  Being disingenuous is exactly like lying, and I'm DONE being okay with men who lie to me, either by omission or right-out.  DONE.

That 2% of me that is still open to his finding a solution and fixing the whole disingenuous thing is stretched very thin.  He's running out of time.

Honesty and respect are MORE important than love.  My last relationship taught me that, opened my eyes to the fact that without those first two things.. LOVE CAN'T EXIST!  Love CANNOT exist in the absence of honesty and respect.

Besides struggling through a VERY PAINFUL morning trying to finish half-assed attempts at whatever, I also had to deal with the tuning me out thing, the thing where he pretends to vaguely respond because he knows he didn't hear a thing I just said.  No matter... I don't repeat myself anymore.  I do let him know, however, that I get that he didn't hear me and that all the begging in the world to repeat myself isn't going to make me do so.  After a year or more of this not listening/tuning me out thing.. I've grown intolerant to it.  I've told him that, fine, if he's that disinterested in what I have to say then I'll simply 'tell someone who gives a shit.'  He doesn't like it, but it's no longer about what HE likes and doesn't like anymore.  I've taken the first step in getting MY life back, replacing the disrespect he shows towards me with my own SELF-RESPECT; something I really should've done a long, long time ago.  Better late than never, I say.

So this morning was NOT a good morning.  But I'm going to spend the remainder of my day taking care of myself, focusing on what I can do to help myself heal, and incorporating those things that will protect me from further harm from anyone, especially from the person I'm living with.  Yes, I still have to work through the damage from the past relationship, but that's already underway and will help with my current situation.

Well, that's where I am today.  It will get better, and I will keep persevering... as long as I can.

Do You Hear Me?

One common theme you guys see here is about 'listening,' you know.. simply NOT tuning someone out when they're talking to you.  Not to say as human beings we can't or aren't ever distracted, or we forget, or whatever the case, because that can and does happen.  What I'm talking about is the chronic habit of just not listening when someone talks.  It's the epitome of rude, of not caring, and shows a blatant absence of empathy and compassion.  This is NOT a good thing, folks.

As more is uncovered with my failing health, as things become more complicated as to the treatments, as my body revolts by making even simple tasks nearly impossible, I find my tolerance for being tuned out and/or not taken seriously has pretty much vanished.  I've hung in there for over a year dealing with this, and I'm just not on board with it anymore.  But you guys know this by now, I'm sure.

One more night of repeating myself, asking questions where the answer was already given, and finding myself in the middle of a energy-draining diatribe where T argues the argument and tries to blame everything on me.  I didn't say it right, didn't speak loud enough, said it at the wrong time, or just wasn't clear enough.  I'm calling BS on all of that, because I can't be anything other than perfectly clear these days.  I'm sick and weak and painful, which doesn't leave me a lot of energy to be creatively-difficult.  Hell no.. I HAVE to cut to the chase, because I don't have enough strength or energy to do anything else.

Why do I bother?  I've been here before and know how it plays out.  Men love to believe they're right, the only ones with answers.  No offense to any guys reading this who aren't cut from the typical cloth.  I know you exist and appreciate you all.  What I'm speaking of here are men who decidedly "Take the path of least resistance" and spin things in their favor.  Hey, if it works for you, congratulations.  But my guess is.. it absolutely doesn't.

Can women be like this?  Sure they can!  But for the sake of argument here, and from my personal standpoint and experience, I've dealt with MEN who do this, which is why that's my focus.

I can't make someone hear me, listen to me, respond to me, or respond or care or give a crap from any standpoint or view.  I can ask.  I can point out the obvious, IF that person is open and not a total asshole.  But I can't make anyone change.  What happens, by default, is that I end up changing the way I communicate with such people, and that usually means... I stop communicating.  It's inevitable, and it's happened before.

Whether the approach is to be a rip-roaring ass or indifferent zombie, the result on MY end is the same.  I don't have any interest in sharing thoughts, dreams, life, whatever with someone who is a jerk in response or barely hears what I'm saying, much less remembers what I'm saying.  Why on earth would I waste so much effort on people who doesn't deserve it?  Rhetorical question, of course.

I'd like to finish my thoughts on this, but unfortunately the jump in dosage of the Azathioprine is kicking my ass.  I will have to finish this another time...

Thanks for your patience, guys....

All Stressed Out

It was a difficult night last night to say the least.  As moods go, mine wasn't the greatest to begin with, and testing me by being disrespectful isn't a great way to end an otherwise peaceful evening.  And yet, this is exactly what T decided to do.  It was just poor judgment on his part, really, so I'm giving him a pass and trying to move beyond that one event.  In having to deal with unpleasantness that late in the evening the anxiety and stress carried itself with me and right into bed; NOT something that's conducive to sleep, much less GOOD sleep.  *sigh*

As much as the current events here can be trying at times, or even more than just trying, I'm often taken back to my recent past and how many times nighttime was wrought with more stress and anxiety than I've ever known.  It's a wash-over of sorts, all this carrying the past into the present.  I was told it's a form of PTSD, that certain experiences were actual emotional trauma that will resurface until I'm able to deal with them properly and un-do the damage.  Or if not to un-do, but rather to HEAL the damage.

During current stressful events the past comes in and waves like an annoying child DEMANDING attention right then and there.  I don't like this but know that the damage done prior is now a part of me, a part of my life.  Thing is, none of it's healed completely.

I suppose healing won't happen until I learn HOW to heal, because I knew THEN when it was happening that I couldn't do it on my own.  And right NOW.. I accept that same truth, which is that this is bigger than me and healing will take time, patience, help, and understanding that I can't get on my own.  But what do I do in the meantime?

Wait.  I just wait.  I'll wait it out, ride out what I can, roll with the punches when they come and try to get up the next day and start over.  It's all I can do.

See, what I want you guys to understand is that a narcissist's reach is far, their grip unbelievably strong.  This is why you need to know who and what you're dealing with, because getting out early before the damage is done is going to be the key to your healing faster and more completely than had you stayed in there.. hoping for the impossible, that being that the narcissist will see reason and change.  That person WILL NOT CHANGE.

If you know you're being emotionally abused, please get out.  If you can't bring yourself to leave, seek help so that you can make that choice and follow through.  Don't allow yourself to be changed, wrecked, and trampled underfoot by someone who only sees you as a supply source for their needs.  Listen to your instincts, and if you're in a new relationship.. PLEASE make sure you're able to assess your current situation and know the difference between normal crap people usually deal with in relationships, and those things that are red flags.  There is a difference between abusive and irritating, annoying, even disrespectful.  But if you don't have the information you need you may not be able to tell the difference.

I'm tired.  Very tired.  And pushing the past back down into the abyss is exhausting.  Time to chill out, watch tv or focus on something other than the crap I'm dealing with.

Til next time...

Random Thoughts at 3am

I had to make that meme.  I suppose it's just that one goofy part of me (sense of humor) that refuses to buckle under the health issues.  Yeah, I'm just ninja like that.

ANYHOO....Insomnia is a fickle bedfellow these days.  Incredibly unpredictable, I never quite know what it is I'm facing when I get into bed each night.  There's something triggering me to wake up when I go to bed, but I've yet to pinpoint exactly what that is.  Even nodding off on the sofa prior to going to bed doesn't guarantee I'll sleep once I get there, and in fact... it's almost a given now that I'm going to be waiting up, tossing and turning, until the wee hours of the night.  And what does this do besides keep me tired and exhausted?  For one, I get strange dreams, ones I really could've done without.  No, not nightmares... just dreams.  But still...

So it's 2am, 3am.. and stupid, random thoughts pop into my brain, which triggers more thinking, thinking, thinking... blah blah blah.  Damn.  Seriously.  WTH?  Most of it isn't even worth thinking about, I promise.

Okay, so falling back asleep this morning in hopes of getting about 5 hours I had a dream, and one that puzzles the crap out of me.  Well, I suppose most dreams don't make sense, right?  They're usually random babbling and broken intel of things we are either not dealing with, dealing with poorly, or unaware that we need to deal, you know, with those things.  But what about those dreams that aren't as chaotic and confusing?  What about the dreams that leave us thinking.. "Wow. That was so REAL!"  What about THOSE dreams?  You know the kind I'm talking about.

If your dream makes sense, what's the message?  That's the big question, isn't it?

I'm not sure what to make of my dream.  The content, which I'm not wanting to talk about, I think I understand, but my REACTION to it is yet another thing entirely.  It made me sad, seeing what I saw in the dream, though the actual thing happening wasn't a sad thing at all.  So.. wth gives?

Sorry to be vague about the dream itself, but some things are just TOO revealing of my own thoughts and feelings, feelings I'd rather keep to myself.  I'm trusting my instincts on this.  I may actually talk about this stuff in detail at some point, but I prefer to wait until I'm ready.  Hope you guys understand.

The other crazy thing that's happened today, post-dream, is that I feel a little anxious about my future.  It's like I'm being forced to assess what I want and how I plan to go about getting what I want, in terms of my future, happiness, health, and so on.  I don't have the luxury of being on auto-pilot, so introspection and continually assessing where I am and where I'm heading is really important.  T is more of an auto-pilot type, and it's not always easy for someone like me who's trying to take the wheel of my own life to be around someone who's just, well, letting life happen to him.  Not to say that his life is bad, because he's really chill and content most of the time.  I like to see where I'm heading, though, so laying back and riding the current isn't going to work for me right now.  Not sure it will ever work, to tell you the truth.

I wish I knew what my subconscious was trying to tell me.  I have a guess, but I don't LIKE that guess so am keeping an open mind and hoping I'm full of it. ;p

That's a lot of writing for someone who's as tired as I am.  Sheesh....

Why are You in My Face Again?

Far be it from me to stop anyone from having their own opinion and expressing them.  However, if you're spewing hate and rhetoric on my FB posts, then we really need to talk...

Lately I have one nemesis, and it's someone who touts being a conservative/republican but behaves like a total left-wing extremist.  Whatever.  I know this person in real life and have to interact with him and his wife on occasion due to my being a customer at their place of business.  So be it.  But there's a huge problem I'm having now with this guy vomiting ugly comments and replies on my FB posts... aimed at military members and veterans on my friends list.  THAT will NEVER EVER be okay.

So while the above person is just a representation for my point here, I think it's time I laid down the facts about what I think about taking a dump on other people's pages....

You don't have to [take a mind dump].  If you want to take a big ole steamy brain dump, do so on YOUR OWN PAGE.  Using the word "YOU" here loosely, as that person doesn't read my blogs.  This is not directed to anyone reading, just to be clear.  I'm basically speaking my mind about good old fashioned manners, etiquette, and just having some freaking class when it comes to dealing with others.  Not to say it won't ever get heated, because it's in our natures as human beings for that to occur.

Shit happens.  Or, "Feces Occur," if you will.

I read a lot that I don't agree with.  I see a lot I don't agree with.  Yes, there are things that offend me.  No, I don't usually react to them and simply go right on past to the next thing.  So why is it that doing the least confrontational thing is so lost on some?

Ugh.

Some folks need a brain enema...

Seriously.

Honesty has become a vulnerability.  People who speak their minds honesty are often faced with ridicule and contempt by those who have opposing views. I believe most of us get this and have experienced that ridicule first-hand.  While a valuable lesson, that ridicule and backlash, while it reminds us how we should choose our words carefully, we must always remember that honesty is STILL the best policy, and that lying by omission... is STILL lying.

A friend who reads all my blogs, and I mean every entry (bless her heart), sent me a message and said, "I don't know how you do it. Aren't you scared of haters bashing you?"  Well, no.. I'm not.  I refuse to allow haters and bullies to dictate how I think, behave, react or don't react to any given situation.  I mean, once you give away your power it's really hard to get it back.  It's best not to give your power to another to begin with.

I've relinquished my power to haters and bullies in my past.  My entire life, up until about 3 years ago, I learned to suppress my feelings, to bury anger deep, to hide the foundations of any feelings I had.  Not to say I wasn't emotional, because BOY was I ever.  I wore my emotions on my sleeve for the entire world to see.  But when it came down to recognizing for more than a second what created those emotions, and when it came down to standing up for myself, that's where everything fell apart, and it did so because I was taught early on that having those emotions.. was a bad thing.

I no longer think that, and because I no longer think that I FEEL more intensely those emotions I used to keep in check to the point of denial.  It's been a liberating process, being able to access feelings like that.  I don't have to apologize to anyone for having those feelings, and I reserve apologies now for when I HANDLE those feelings badly; thankfully this is seldom an issue.  So when someone writes me and is worried because I allowed the emotions and thoughts etc to flow freely on the pages here, or in my other blogs, I DO take into consideration what they're saying, but I also take into consideration that I've come a very long way to not only reach my feelings and access them more fully than before, but that it's MORE than OKAY to express them.

There is a danger to being honest.  There's a danger in speaking freely at times.  There's a risk that you won't please one person or another person, etc.  Not everyone is going to like what I'm saying.  But so what?  There will be those who DO, and it's with those people that the unspoken camaraderie is expressed and felt.  What I say, what I express, actually has helped people, and it's certainly helped me.  So I've no intention of changing this, just so everyone here is clear on where I stand.

I will accept the dangers of honesty and continue to be honest, sometimes bluntly, and I will take into consideration the edges honesty has by definition.  I'm not out to hurt anyone, and this is why I name NO names here as to whom I'm speaking about.. IF I'm speaking about someone else.  It occurs to me that having to say this means I'm still aware, very aware, of the risks I take.  But it doesn't matter.. I'm not here to write fiction or make things look better or worse than they actually are.

I'm going to be myself, haters and bullies be-damned.  No one should give up pieces of themselves for others to devour, and that's exactly what you do when you censor your words, thoughts, and feelings in a place or forum where you're there to speak your mind.  People can choose to read or not read, listen or not listen.  Actions are a choice.

So to my friend, though we've spoken about this at length--I hear you.  And I'm okay.  I'm okay with what any hater or bully thinks about me, because I don't answer to them.  And.. you shouldn't either.

It begins the same every day...

....And it ends pretty much the same way.
Predictability to this degree is less than optimal for a full life.  Maybe that sounds a bit over-the-top, but it's the truth just the same.  And let's be clear here, I'm not speaking of the predictability that's needed in most important circumstances, but the kind that you recognize and expect because of history.  If you have a predictable outcome, what's the incentive to do anything any differently?

My attempts to affect change have fallen short of anything I would ever dare call success.  When problems or difficulty arises and the outcome is always the same, redirecting my approach to the issue just makes perfect sense.  Let's try something different; this is what I tell myself, and it's what I do, and somehow it still seems to make little to no difference whatsoever.  So then, what's the solution?

Maybe it's time I implement a little indifference myself, invoke the goddess ignora as it were and use my resources, whatever they may be at the time, to implement the change I want in my life.  Yeah, sure.. I know that sounds like the better place to have started, but there's this little thing called 'communication' that always seems to get in the way.

Will it FEEL different if I do something new?

Has it to-date, you know, FELT different?  No.  Not really.  And why would it matter what something FEELS like?  Because FEELING is everything.  FEELING is what stops us, encourages us, demands, suggests, and invokes an action or reaction to any inner or outside stimulus.  Get your mind out of the gutter. ;)  In all seriousness, unless you're a complete sociopath who feels nothing at all, this should make sense.

Okay, so what is it I FEEL then?  Anxiety.  Mild anger.  Disappointment.  Bewilderment, and... wait.  Is this what I'm really referring to when I say FEELING?  Maybe not, because that list is really more the EFFECTS of those feelings than the actual feelings themselves.  Well damn... that just got complicated, didn't it?

So what I'm basically dealing with here is changing MY behavior and the way I look at things so as not to have to constantly fight for what's right, or to be heard, or to even be respected.  Respect will still be a HUGE deal for me, of course, because that's part of what and who I am.  But I'm not going to allow disrespect to alter how I FEEL---as just one example.

I realized last night that I'm still in that place where I allow my health and my body to be torn down by the treatment of another towards me.  I can't keep doing that if I want to heal, to be healthy.  I just cannot allow that to continue.

The next step is... to break free of those chains that bind me, the ones I was shackled with as a child, carried into adulthood, and allowed to be manipulated by someone I'm with.

....I've got the 'what,' and now I need the 'how.'  That's at least something.

It Was Real the Entire Time, and You Didn't Believe Me

This is basically a PART II to the previous entry, just in case you're confused as to where I'm going with this.  This week, particularly today, damage from my past has surfaced, and partly due to seeing my life in a different way post-diagnosis (Autoimmune Hepatitis).  My recent diagnosis isn't the only reason, but it's a huge part of it for sure.  You see, in my last relationship I wasn't believed when I said I was sick, that I was SO tired, that my whole body hurt, that I really just didn't feel good at all.  I wasn't believed, and I was scoffed at, mocked, and ridiculed for having the audacity to talk about my failing health, even blamed for it happening.

It began with a few issues with my heart, some of it I'd been dealing with my entire life.  Mitral Valve Prolaps, for example, and progressed to a degree that I now have moderate-severe regurgitation that has to be monitored now every 6 months with cardiac echo, and it was confirmed that the regurgitation has worsened even from a year ago via cardiac catheterization, where it was then still at the moderate level.  Now they monitor for any changes that may indicate I will need a new valve.  I was also diagnosed with Diastolic Dysfunction, Grade II.  Even my Hepatologist said, "You realize that's a form of heart failure, right?"  I nodded my head and acknowledged that, yes, I did know.

In 2013, in January I was hospitalized with chest pain, where they discovered that I had mild pulmonary hypertension and that the regurgitation had progressed to the moderate stage.

In 2013, in March I had a TIA (Transient Ischemic Attack, aka Mini Stroke), and then they had no clue it was due to one or all three of the heart arrhythmias I had, something that wouldn't be found until January 2013 after I'd gotten insurance.  I knew of one heart rhythm disorder, but I didn't know what it was called.  I'd had it since I was a kid, though.  It's called SVT or Supraventricular Tachycardia.  They also found Atrial Fibrillation (AFib), which they say caused my TIA, and Atrial Flutter, which also could've played a role in the TIA.  All of them could play a role, so I was told.

In July 2014 I had Cardiac Catheter Ablation for the arrhythmias and have remained mostly arrhythmia free, with the exception of a few Atrial Runs and PACs.

My symptoms over the last few years were often debilitating, with terrible pain in muscles, joints, chest, issuing and worsening weakness in body, and the feeling of just being 'sick' all of the time.  On occasion, and for a short time I would come out of that and feel nearly normal.  Then out of the blue it would hit again and take me out at the knees.  I didn't have health insurance so didn't run to the doctor for anything unless I was forced.  I had no idea at the time what was happening...

I knew something was very wrong, knew that the way I felt wasn't normal at all and more like what maybe a 90 yr old would feel like if they were in bad health.  No, seriously.  Not kidding about that.  But while I was in that other relationship I wasn't believed, was scoffed at for having the gall to mention how bad I felt, etc.  I was under enormous stress from that situation, which made things far worse than they really needed to be.

And yes, I was told it was in my head, 'psychosomatic' even, as if anyone in that situation had any degree to make a diagnosis.  My symptoms were waved away, dismissed, and ignored.  I was ridiculed and made to feel unwanted because I was 'sick' a lot of the time, and yet I wasn't allowed to take the time I needed to take care of myself, to sleep, to eat without anxiety or guilt, to just relax into my life the way others are able.

On that side of the fence in that relationship I was enduring a lot of criticism, and I'm sitting here today wondering how people, anyone, especially someone who claimed to love me.. could do that, to not be one of my advocates, a person who lifts me rather than tears me down.

The finding of AIH recently has opened old wounds, and I'm angry that I was treated like shit because I felt bad so much of the time, told that I wasn't any fun, couldn't keep up, wasn't worthy of his time, attention or love, not even worthy of respect because... I was harshing his mellow, so to speak.  How dare I be sick when it wasn't any fun for him?  Yeah, it was actually like that.

I'm sad too, though.  I'm sad because then I believed the lies, the confessions of love that wavered and didn't really ring true now that I look back.  I was left to feel inferior, like a burden because I couldn't put a name to what was wrong with me.  To tell you the truth, even had I known it wouldn't have mattered to him at all.  He couldn't be with someone who was sick, even if it were temporary.  Okay, so I really dodged a bullet on that one, I agree completely.  But did it HAVE to be so bad?  WHO treats someone like that anyway?  Rhetorical question, of course.

The wounds have reopened.  I'm sure it's for a reason, because even now I can view this from another perspective.  But it's stirring the gears of that damaging machine again, this I can tell you.  And I'm pissed off, I am, but I can view that as a positive in that here I am making my way through the stages of grief again, and maybe that this time I'll be mad enough to get right through to the end and stay in the mode of... acceptance.

But I have to tell you what it's like to have this knowledge of my health now while looking back in the recent past at the few who decided that I was either lying, or that it was all in my head.  I'm disgusted as I think about that.  I'm not impressed with the lack of empathy, how the few decided they were to put on their little doctor hats and play hospital with MY health.

Gas lighting, the dangerous way...

It has occurred to me, even after much discussion about gas lighting, that it was actually being used on me with regards to my own health, my body, and in ways that was absolutely NOT in my best interest.  Well, gaslighting is never in anyone's best interest but for the narcissist who uses that tactic, which most of them do.

I was ridiculed and scolded repeatedly, made to doubt, to feel shame about my talking about just how bad I was feeling, physically.  I was told and told it was in my head, that it was 'psychosomatic,' that a 'psychic' was consulted who said the same thing, that it was all psychosomatic and in my head.  I was told that and told that, and those burnt offerings were tossed upon me at every turn.  The result was intense stress and anxiety, self doubt turning to self-hate as I began to believe what I was told.

It was all wrong.  He was wrong.  Time and time again he was wrong, and those involved in the situation, in MY private life were just wrong.  And even now it makes me angry, though I wasn't angry at the time.  In fact, I couldn't even feel anger and hadn't for some time; another issue my therapist was trying to help me with.

They were all so very wrong.

Today as I feel the AIH symptoms ebbing, as I feel the side effects of the serious medications to suppress my immune system come on board, as I go for weekly blood draws to assess what the medications are doing to my body, as I look at the future and tell myself this is going to totally stop my liver from developing cirrhosis, as I look at how my life is radically different, how my future is uncertain, and look back at how bad I was made to feel over things I couldn't control... I'm both angry and sad.  And the little voice in my head just says.. It was real.  It IS real.

I wonder how differently things would have been for me had I not had the additional stress, anxiety, and resulting depression?  How different would things be right now with my health had I not been put under SO MUCH unnecessary scrutiny, judgement, and ridicule.  Would the AIH have been in remission and stayed?  Would it have come back as badly as it had?  Would I have had that TIA in less than a week after the big fight with my ex?

Being treated better wouldn't have cured the AIH, and it may have just prolonged the flare that would eventually have brought about a diagnosis.  But stress and anxiety DOES make AI disease flare, so it's best to be avoided when possible.  It would've been nice to have had that person on my side, to have been comforting rather than hateful, rather than judging me for being sick in the first place, maybe to have had compassion, enough that inspired concern rather than ire.  Maybe the extraordinary stress from the fight in April wouldn't have happened had there not been this need in him to hurt me repeatedly... I don't know.

What I do know is that I look back and feel disgust for a few people who decided that they knew my body, my health better than I did.

I'll get over the anger I feel right now, the disappointment, the confusion that seeps in through the cracks despite my best effort...

Today is just not that day, I guess.

The Crap I Spew

Oh, but you've no idea how many times since I created my first blog that I wanted SOOOOO much to use that title.  And trust me, this is something I've wanted to do since my Myspace days, which began over 10 years ago.  Ha!  But I do still have my sense of humor, even if only the few actually get it.

I'm good with that.

So what about this "Crap I Spew"?  Well, I may very well start yet a new blog and title it just that.  Maybe I just need something that allows me to... wait, okay.  This all sounds very familiar, doesn't it?  Like I need yet another blog.  I mean, isn't FOUR enough? lol  I like keeping things orderly, and maybe that's why I've been comfortable separating the 'goings-on' into categories, split into separate blogs for separate 'blah-blah-blah-ings.' But who the hell cares, right?  Read them.  Don't read them.  I wouldn't know, would I?  I mean, either way, unless someone emails me, calls, texts, or whatever... how the hell would I know?

Okay, so I can feel it in my bones, the crazy side of me needing to be set free so she can run amok, nekkid, in the abyss known as the internet.

The Crap I Spew... coming soon to my blogger account.  HOT-DAMN but I'm going to make it a 'thing' after all these years....

...a girl needs goals.

Today is not the best day for that

Sunday.  End of the week.  The last chance to get anything done.  I totally understand sleeping in, though my body won't allow me to do that.  I understand T wanting to sleep in.  Totally get it.  My only thought in that is: What will he do with the waking time?  We're not exactly in 'normal circumstances' mode right now, as we are still surrounded by boxes and clutter from things that need to be either put away, assembled and put away, or just organized and cleaned out.  I did most of that myself during the first week on Prednisone, and I'm afraid I actually overdid things because, honestly, I didn't know how much energy I would have from one day to the next, and I don't have any help here but for T.  And truly.. he's very little help.

My son, the one who lives closest to me, is till roughly about 4 hours drive away.  Not really close in the great scheme of things.  But he's offered to come here and help.  The trouble I have with that is that he'd have to take off work in order to do that, and have an 8hr round trip drive.  And just to do things that T can actually do himself.  Oh, there are other alternatives, but T won't allow it.  This is also another issue I have with this situation---not being able to make a decision on my own and actually act upon it.  I'm really rather tired of being treated like a child, a slave, and am so very close to just saying... F it all.

I do what I can with what my body and energy will allow.  I push, and I push, and I keep pushing long-past what I know I should really be doing.  It isn't enough, though.  For all that I can do, the remaining tasks are out of my reach at this time.  So who's going to do this?

I offered to look online, call around, and find a "handyman" who can do these relatively simple tasks. I can't even tell you how tired I am of walking around boxes that have been sitting here for nearly a month now.  It doesn't make sense.  It just doesn't make sense.  Except in that I know T for what he is, and he's a guy who could literally care less if the house he lives in falls apart around him.  How do I know this?  Well, for starters, I remember the first time I saw his house, the one he lived in for 10 years.  The disarray, to say the least, was uncomfortable, and it (for all practical purposes) looked like an abandoned house inside as NOTHING was ever cleaned.  I refused to take a shower at his house, because I felt I would be clean if I stayed OUT of those bathrooms/showers.  Dear God, you've no idea how bad it was.

I felt sorry for him at the time, and I even tried cleaning it up myself FOR him.  It was an IMPOSSIBLE task.  I spent hours trying to scrub stuff that simply would not come off.  And I'm telling you, that was just in the bathtub and shower.  And the smell...

He told me that his ex wife was to blame.  He said she made a mess out of everything and wouldn't clean the house, etc., etc.  However, he'd been divorced and living away from her for YEARS.  So what about cleaning all that up after she left???  How about hiring someone to come in and get things right so you don't live in filth?  I bought the story.  Stupid, stupid, stupid me. Why the hell do I insist on trusting people, I've no idea, as history repeats itself in the guys I end up with??

So here I am, 2nd anniversary just yesterday, and I look at the pattern of what is and what is not done in this house, and the last one we lived in, and I see that exact pattern in him.  I KNOW there are guys out there that AREN'T looking for a mother, you know.. someone to clean up after them etc.  Because I've met men who took great pride in what they have, what they own, and they respected their investments, be it home or car or belongings of any kind.  Oh, but there've been a couple I've been with who take everything they have for granted and let it fall to waste... claiming.. they don't take their stuff for granted.  Right.  Proof is in the pudding, sir.

In the midst of this clutter I long for a better life.  How can I not?  I'm not a filthy person, and I despise clutter.  I grew up with a mother who was a hoarder, and I hated that even as a child. Why would I be okay with it as an adult?  T isn't really a hoarder, though there are a few aspects of what he does that hint at the tendency.  Keeping crap that he says he's going to sell one day but never sells anything.  Keeping things that he will never ever use, claiming he might use them one day.  And as it piles up and there's no room for anything... that's where the tendency or pre-disposition shows itself clearly.  The only difference is that he doesn't buy new things and keep them.

I'm about functionality.  Yes, and having lovely surroundings is part of who I am as well, part of being a woman really.  At least most women.  It's that nesting thing.  I like that about me, and I'm not willing to change that at all.  No matter what you have or don't have you can still make things nice, clean, livable, and make it look and feel like home.  If you're living with someone who could care less about that, then you may find yourself struggling on a daily basis to maintain that feeling.  And THAT is where I am right now.

We moved here because I needed peace, serenity, to get out of a racket and noise-filled city.  I didn't dislike our neighbors, except for the ones we knew were selling drugs. They were eventually evicted anyway.  But the noise, and looking out the front window to see anything but inspiring sites.  It was grating on my nerves.  T, however, could live anywhere in any neighborhood and be okay with it.  That's what it looks like when someone doesn't give a shit.  I'm so opposite of that, though, and it's causing a great deal of unrest and turmoil in my life.  And don't even get me started on the anxiety.

What did I discover after the move?  I discovered that it's still insanely difficult to find my peace, and it seems like the only time I actually ever have it is when I'm alone, or when I'm laying in bed at night.  Oh, and I guess I didn't mention we're sleeping in separate rooms because T snores like a freight train and I was getting absolutely NO sleep whatsoever.  I'm sorry, but his not wanting to sleep by himself is lower on the totem pole than my declining health.  I was firmly warned by my GI specialist, my lung doctor, and even my primary care physician... that if I kept sleeping minimally that it would have dire effects on my heart, my lungs, and my overall health.  And now that I know I'm dealing with at least one autoimmune disease, I can't risk the triggers such as physical and emotional stress, especially while on prednisone.

So what does it all mean, then?  Where do I go from here?  Can I even FIX anything wrong here?

PART II of this will address precisely where I am at the moment, choices I have to make, and so on....

PART II: Never Mind. Seriously. Just Never Mind.

First let me say this: I'm not demonizing T.  I do love T.  But you have to understand that his behavior is destructive, not only to the relationship, but to me as well.  I've tried to help him understand what his behavior does, how it affects US, and how it affects me.  I haven't pointed out that it affects him as well, because stating the obvious is never going to get the point across.  He has to come to THAT conclusion himself, to figure out for himself how things affect him, etc.  I can't do that, nor can I speak for him or his feelings.  I've asked, and he's shared very little.  His choice entirely.

So at this point, as mentioned in previous entries in my blogs, I have to now focus on myself, my health, and getting strong and healthy again.  My life depends on it, and I'm not willing to give up quality of life in order to make room for T's ego.

How did I get here, and does it make ME self-centered to make myself the center of my own world right now?

Giving so much that you lose yourself is unhealthy, and it WILL empty you at some point where you have nothing left to sustain yourself.  I've given, given, given, accepted, self-blamed, and a plethora of other unhappy endeavors, thoughts and considerations until I really was left feeling completely empty and unhappy.  My attempts to fulfill T's needs without replenishing myself was the worst possible thing I could have done.  But I chose to do it to make him happy.  Over the past couple of years this went on--my giving, giving in, ignoring my own needs and desires, putting all I am to the side in order to make sure HIS world was right.  Now I'm left of what's left of the person I used to be, and trust me when I say I've been here before... it's unhealthy and destructive.

The dialogue began to change when my health began to decline.  Over the course of many doctor visits, tests of every kind, a few diagnosis and procedures... I realized that the person who was sometimes next to me was not only clueless at what was happening to me or how I felt about it all, but it was a CHOICE he made each and every day.  He would spend so much free time on FaceBook, picking away at his phone and reposting memes and articles and so forth that didn't enrich his life, OR our life together.  I observed this over the past two years and wondered, at first, why he didn't spend that much time learning about what I was going through, the sometimes dangerous and necessary procedures I was having, WHY I was having them, and what it meant.  Eventually, I asked him why.  He really didn't have an answer, and to this day still doesn't have an answer.

I had an idea that I would be going through these life events WITH him.  I believed that maybe he possessed even the smallest curiosity about anything I've been and am going through.  I was wrong.  So wrong.

What was the turning point?  When did I recognize the indifference full-force?  That one's easy.  The day I had the fine needle aspirate for a large thyroid nodule found during an ultrasound of my carotid arteries.  When I was told I needed a biopsy I didn't know that I would be going to that appointment alone.  This wouldn't be the first time he did this...

Transjugular liver biopsy was the reality check: Liver biopsies are extremely risky, and doctors have to seriously weigh the benefits against the risk before deciding on this measure.  In my case, not only was a liver biopsy ordered, but I had to have it done via catheter via the jugular vein in my neck so they could assess portal pressures.  Even the radiologist sat down and explained how "Tricky and complicated" this procedure is, then asked me if I had anyone there with me, or if I wanted to call someone to come to the hospital to be there... and that he would wait for them if so.  That's how risky this procedure is.  Where was T?  He dropped me off at the hospital for the procedure and went to work.

He dropped me off for the procedure and went to work.

As I sat in the critical care area waiting for the radiologist to return I looked around at the other patients there, some of which were waiting for their procedures to be done, or was in recovery mode. ALL of them had family and/or friends with them.  I was the only one there by myself.  Even the nurses kept asking me if I had someone there with me.

When the radiologist returned I told him no one would be there and to just go ahead.  He asked me if I had someone to take me home afterwards, and I told him yes.  One word.  Just 'yes.'  It's all I could say.

I was a little sad as I was taken into the surgical suite where they would do the ultrasound-guided procedure.  It was a painful process because I can't take morphine (allergy).  I felt it all and was awake.  Groggy, but awake.  When it was over they took me to recovery.  I called T and told him I was in recovery, and he said to call him when they released me and to meet me where he would be picking me up.  An aide took me downstairs to wait when the time came.  T didn't even bother coming up to walk with me.

This is the part when things begin to shift, when you see that person for the first time, when you look at them and barely recognize who you're looking at.  You wonder who they are and why you're there with them.  That's what I went through.  I wondered who this guy was who was, for the most part, behaving as if he were just some neighbor or something who gave me a ride that day because I had no other way to get to/from the hospital.  Who the hell IS this person? ... that's what I still ask on nearly an every day basis now.

My life became about me when I realized 'me' is all I had.  AIH, the lung issues (COPD), the worsening heart valve problem, the struggle with pain and other unpleasantness that refuses to resolve and stay resolved, all of it is MY struggle.  My struggle to get well; my struggle to cope, find answers, find strength, to continue to make choices based on what's right for my health and life.  In this I discovered that I couldn't continue to put his needs, wants, demands, etc. ahead of my health any longer.  I did that once before in my life and paid dearly with my health.  I'm not willing to do it again because, this time, the stakes are much higher.

I reserve the right to protect my life now.  T made choices as I gave him everything, as I put my own health second, my happiness last, placed my entire well-being on hold.  He made choices that benefitted him and hurt me in the process.  And he continues to do so.  Yes, I've told him.  No, he's not really responded with anything other than to feel sorry for himself.  He refuses to take a step back and LOOK at what he's done, what he's not done, and how it's changed the way I see him, and how I see US.

Been here, done that before.  I know how this works, and I know how guys like him think.  The more he pities himself, the more he refuses to acknowledge what's happened, the further back progress is pushed.  Now there's no progress.  Things aren't better.  And, frankly, I'm just too damn sick to fix it all myself.  It's been tossed in my lap, this stuff, and I'm not up to carrying the load anymore.

So every time I speak and he says "What?"... every time I repeat myself, only to have him retain very little of what I say, each time I'm sitting right next to him and talk.. and he says "What?" or pretends he heard me but didn't... I distance myself from him even more.  It's about protecting myself now, protecting my health, my life.

I absolutely refuse to allow another guy to suck the life right out of me.

Now when he says 'What?' I have only one reply:  "Never mind.  Seriously.  Just never mind."  T's response?... nothing.

So be it.

PART I: Never Mind. Seriously. Just Never Mind.

Where the hell are my headphones?  I need to retreat to a safe place!

Same shit, different day, new perspective on an old and growling beast.  I don't run from the things I have to address, but I also don't face them until I have my crap together either.  So when I find myself continuing to observe T's indifference, the disconnection despite his denial, I begin visualizing a much better life far from 'here.'  I wouldn't be the first woman to have the need from being freed from such damaging bonds.  Crap, but I feel like a caged animal at times.

He doesn't listen, which means I have to repeat 99% of anything and everything I say.  And what he hears, or says he hears, he remembers very little of, even of the most critical and important of things. No, he doesn't have a 'memory' problem--he has a SELECTIVE MEMORY problem.  Like many men, he's afflicted, and he will find himself on the outside FAST.  Well, to be honest, he's pretty much there already and is too damn self-centered and egocentric to notice. smh.  I almost feel sorry for him.

Almost.

So what happens when Mr. Man tunes out?  Well, the beginning part of the process is pretty self-evident, isn't it?  When a woman doesn't feel 'heard' she tends to speak "louder," though that doesn't mean volume-wise.  Ask to be heard.  Demand to be heard.  And then... eventually... doesn't care if 'he' hears or not because, by then, most likely someone else has come along who really is listening.  And before you 'go there' and think we're talking an affair, let me say THIS:  It is a human need to want to be heard, for someone to show they give a shit, and just because you find someone who listens, gives a shit... doesn't mean you're sleeping with them.

When you've wasted time on someone who doesn't bother to listen, hear, or acknowledge.. OR remember anything you say, it's only natural to stop talking to that person.  Funny thing about that, too, because it's always when you've given up, stopped talking, stopped sharing, and begin disconnecting that the other party decides they suddenly notice.  Doesn't usually fix the behavior, and it usually brings on board even more problems because that person suddenly feels 'needy' in the absence of what they once had.

On the flip-side of this is when you're dealing with a narcissist, the one who is constantly needy and making demands, unreasonable demands, while accusing you of not 'being there.'  Oh God, but that is an insane situation when it happens.  Lucky for me, T isn't much of a narcissist, and not a malignant one as I can see, but he's so self-centered that he's pretty incapable of being there for another person.  No joke.  Not kidding in the least.  He's clueless.

In my situation, especially at this point in treatment for the AIH, it would be nice to have someone ACTUALLY present.  Not sort of present, going through the motions of being present, but ACTUALLY PRESENT.  "Wish in one hand..." as my mom used to say.

On my own.  Okay.  Well, if you're not going to be there for me, then get out of my way!  Yes, I've told him this, point-blank.  He just decides that he IS there for me, though there's nothing really in his behavior that makes him 'there' for me.  I can't reconcile this at all.  Neither can he.  He can't explain, then says he 'understands,' which are simply mere words to me.  It's not like we live in separate households and have completely separated lives.  He's here, but he's NOT here.

It would be different, understandable if we lived in separate places entirely.  When you don't live with someone you have to allow them room and time to live their own life, to do what they need to do with regards to just everyday living.  That's just respectful.  But when you're in the same household and you're not there... that's an entirely different scenario altogether because you're supposed to be working together for at least some common goals, there to help one another, etc.

Give me some damn space!  Let me BREATHE, for crying out loud!  Indifference can be quite suffocating.  Has anyone ever noticed this?  Because I certainly have.  It's a lot like being trapped.  It really is.  Nothing looms larger in any room than an absent human being.  Yes, you can quote me on that.  It's how I feel, how I see it, and how I experience it.  "It" being living with someone who is completely unplugged and self-centered.  I feel like I'm suffocating...

There are times I need to talk, REALLY need to talk.  I'm still reeling from this recent diagnosis, and I'm confused and bewildered as to what to do, how to deal with the disease itself, the harsh and necessary treatment protocols, the uncertainty of the future, and I've no one to talk to about this.

Autoimmune Hepatitis is a RARE disease, so there's not a ton of people out there talking about it, sharing their stories, and so on.  There's not a ton of information on it, and even less as how to cope with it.  And here's the clincher... T has NO clue what this disease is about, how it can affect me over the course of my life, prognosis indicators... NOTHING at all.  Why?  Because he's not BOTHERED to learn anything about it.  He's absolutely CLUELESS about AIH.

What am I to think of that?.... heading to PART II to expound... and oh trust me, I feel a vent coming on...