What If.....

What if I said I wanted to pour my heart and soul out to you?  What if I could, even for a very short time, find such trust that nothing, absolutely nothing would be off limits in what I could share?  What if I didn't hold back, didn't keep my entire heart's secrets walled off from the rest of me, and expose every one in such detail that it took your breath away?  What if... I told you a secret you'd never forget, no matter how hard you tried?

What if you could be surprised at the stories I hold inside?

What if I told you that I've never trusted a soul 100% in my life but that I'm willing to now?

What would you ask me if you could ask me anything?

What if I told you that you'd be surprised at who I'm talking to, and would you want it to be you?

"....You've chosen lessons of pain."

I received a message with this video in it yesterday.  I have no idea who the person is who sent it... but, oddly.. this is one of my favorite songs and one I listen to every night.  Headphones on, dark room, and songs to obliterate the thoughts....

All alone you felt (All alone you felt)

Since the angels brought, you, down

Fly, too, high, now, you, have fallen perfectly

Certainly you'll see (Certainly you'll see)

[You] have a special purpose

To share

All, your, dreams, have, come, together perfectly

Could you open your mind

And see the reason

You've chosen lessons of pain

For a warrior's heart

Truth and inspiration

Reminds us to not be afraid

They don't understand (They don't understand)

Though they call themselves, your, friend

Fate, has, brought, you, back, to find your destiny

Should you travel deep (Should you travel deep)

Hear the voices, light, the, way

Souls, .... and, reveal your destiny

Could you open your mind

And see the reason

You've chosen lessons of pain

For a warrior's heart

Truth and inspiration

Reminds us to not be afraid

*instrumental*

Wipe your tears

It's all right

And revel yourself in the truth

You're the strongest heart

All these tears

All these nights lead down a road that seems like a maze yet

All you encounter will make sense in time

Could you open your mind

And see the reason?

You've chosen lessons of pain

For a warrior's heart

Truth and inspiration

Reminds us to not be afraid

Could you open your mind

And see the reason

You've chosen lessons of pain

For a warrior's heart

Truth and inspiration

Reminds us to not be afraid

Could you open your mind

And see the reason

You've chosen lessons of pain

For a warrior's heart

Truth and inspiration

Reminds us to not be afraid

The Art of ASSumption & The Most Powerful Thing to Be.

I spent the last 1/2 hour or so talking on the phone to a friend of mine, who also has a blog as well, and we talked about life, health, girl stuff, and so on.  During the course of the conversation, and as the conversation settled into more meaningful, deeper topics... we both came to the realization that scrutiny is good, and ASSumption is bad.  Okay.  Sounds silly when you put it like that, but why confuse the issue with pretty words?

Somewhere between acquiring information and implementing reason something can go very, very awry, and the consequences aren't anything to write home about.  So why do people fall prey to the rather weak lure of assumption when the truth is often, though not always, fairly interesting?  G and I concluded that we definitely are in the middle of a dung-pile of thrill-seekers who can't handle being removed from the most caustic drama available.  And when it's not available... they set about constructing the facade that will most assist them in their endeavor to be shocked, appalled, thrilled, and mortified.  How crazy is that?  Well, maybe it's not crazy at all.

Humans thrive on drama.  Whether you have drama in your life or not, and it doesn't matter who's fault the drama is, people just can't seem to help themselves when said drama isn't up to par for their taste.  It takes talent, G and I agree on this, and we believe that in all seriousness people hone and perfect this skill that is not at all unlike mental heroin.  Once people try it.. they can't do without it, and when their 'stash' of drama runs low, or it's just not doing it anymore for them, they have to enhance it somehow.

Right before G and I hung up so we could, you know, blog about it (grin)... we both thought there was, in so many ways, a certain kind of power with being honest with blogging AND life.  When you realize your advantage, when it finally hits you that you're actually in a position power... the anger against having ASSumption being projected on you... that's the moment you win.

The most powerful thing to be, hands-down, is underestimated.

Now, this isn't anything new.  I've known this, as most do, my whole life.  Or at least fairly early on at some point... usually in childhood.  Even if we don't recognize it right off deep in our gut we know.  The first time someone doesn't believe us when we're telling the truth--realization sets in.  And either then, or later on in life, at some point in time... you understand fully that the moment people don't give you credit for having intelligence is the moment they relinquish their own power.. to you.

People who don't respect you try, even subconsciously, to discredit you.  This is a very strong form of underestimation of you as a person.  This means they underestimate you, therefore, can't predict what you will say, do, or think at any moment in any situation.  The mistrust they infuse doesn't move beyond themselves and, therefore... they weaken their own ability to 'keep up.'  My question in all of this is.. "Why on earth would they deliberately assume the position of weakness?"  Well, that's something only those people can answer.

I can be amused by all of this easily.  However, as G and I agreed, there's a certain element of pity that comes into play when you realize that when people choose to inject ASSumption into truth that their lives must become terribly distorted as a result.  How can anyone find anything good if the distortion becomes a barrier to actual communication?

At this moment I can visualize G blogging away frantically---excited to know she's not as powerless as she once thought.  It was a good conversation.

Off to re-post on my other blogs, then to read G's blog...

What a weird freaking day.

Screams behind the silence.

Be proper.  Be respectful.  Don't say anything.  Allow it to hurt.  Walk away.  Seek solace within.  Shut out the world.  Be careful.  Bury it deep within.  Try and forget.  Sedation in sleep.  Don't talk.  Don't FEEL anything and it won't hurt.

No matter what I tell myself the truth behind the feelings won't give me respite.  I've refused to allow myself the freedom of addressing what "I" need in the past and felt the sting of days and weeks and years lost, years where I was put on pause and left to wither inside.  Right now I can't say I'm doing well in that department again.  This time... I feel myself, who I am, once again collapsing beneath it all.

I try to remain as silent as possible, as still as I can bring myself to be.  That silence, though no one understands, is louder than anything they could actually handle.

WTF kind of life is this anyway?  None.  None at all.

A Few Precious Minutes to Myself

People sometimes want what they don't have, covet what they will never have, and forget to appreciate the important things they're almost guaranteed.  Why does this happen?  I can't speak for everyone and won't try to, but I do know ALL of us fall prey to this.  And if you're one of the few who think you don't.. I would suggest taking a few steps back and looking good and long at your life, because you may just be missing out in ways you never even realized.

We get too close to see the big picture.

It's not like I can't admit to over-scrutinizing my life and everything in it.  It's where I am at the moment, always in that mode of trying to figure things out and understand.  The whole understanding this is part of who I am, and yes... I can over-think things because of this.  It's okay, though, because eventually I discard the deadwood information I glean from digging in too deep.  It's a bit like cleaning house.  Seriously, if you look too closely for dust.. you're going to find it.  Yeah, you know what I mean.

I spend my insomniac nights over-thinking in order to try and solve problems.  It doesn't work.  I know it doesn't work.  But I do it anyway.  And I shouldn't, really, because it just makes me freaking tired.  Okay, so where am I going with this?....

Alone time.  Me time.  Just time to myself to sort through the muddle that's my life right now has become as important as sleep, as breathing.. because I'm finding that in that space, while I can actually take a breath and breathe, think, and allow the quiet outside to seep in a bit, I feel better.  No really, I just feel better in that state.  Maybe it's the whole needing to hang on to my independence thing, not sure.  But it doesn't matter the why as much as it matters what good it does to my soul, my spirit, my being..to simply have the time to take to regroup and heal inside and out.  It's hard to explain that last part, so I'm not going to try.  Many of you may already understand what I mean.

This morning, on a Saturday, I'm able to take time to just drink coffee, read a bit online, listen to the absolute quiet.  I hear the heater running, a ticking clock in the breakfast nook, the wind when it rushes through the big trees outside.  I hear all of this and know it's all about 'the still.'

I'm appreciative for these rare and precious moments when I have less pain, when the depression isn't taking hold, when I can sit and drink coffee and just... be... me.  Life will return shortly, and everything will change.  I'm hoping that this weekend will be peaceful and not filled with my chasing life while it dashes and darts away just out of reach.

In the meantime, as I sit here in the quiet, my past history visits.  This time, however, I'm not shaken by any of it and can simply look at what was and see it as.. 'what was.'

I'm not controlled by anyone anymore, and that gives me peace.

I don't have to use every single ounce of my energy trying to please another person, and that gives me peace.

I don't have to meet anyone's demands, and that gives me peace.

I can say "NO" to that which harms me, including people, and that gives me peace.

I don't need anyone to tell me I'm okay, or loved, or liked, etc, and that gives me peace.

I can take care of myself without guilt, and that gives me peace.

I don't have to ask permission for anything, and that gives me peace.

I can listen to my instincts and follow them, and that gives me peace.

My know my choices are mine, and that gives me peace.

I have found my voice, and that gives me peace.

I can speak my mind, my truth, out loud, and that gives me peace.

I don't have to explain myself unless I choose to, and that gives me peace.

I don't have to cater to another, and that gives me peace.

I choose to not be bullied, and that gives me peace.

I can stand up for myself without guilt, and that gives me peace.

I don't have to listen, take, or act on advice I know isn't good for me, and that gives me peace.

There is a long list of things that give me peace, and while my life isn't perfect (and NO ONE'S ever will be, including mine) it's still MY LIFE.  MY life.  So in this imperfection of life I know things won't always be rainbows and sunshine and butterflies (well, maybe butterflies).  I accept the reality of reality and can choose to live accordingly.  I can make these choices because I broke free from a relationship that sought to destroy all I am.  While I didn't come out of the station unscathed, I walked away with enough of myself to know I'm healing JUST by making that exit.  I walked right out of the dark and into life.

In the still I can sometimes see better, think more clearly, and take an inventory of what should be kept and what should be discarded or changed.  This isn't a bad thing, btw.  I realize what I need to work on.  I'm aware of those things that I need to change.

I'm not going to be anything but myself.  Gone are the days when I try to reinvent myself for another person.  And trust me, the whole 'reinventing' oneself thing isn't a bad thing as along as we remember to still be ourselves while making those changes.  Trying to be anything or anyone else is a total recipe for disaster.  I tried it to suit another and am still paying the price for that huge mistake.

Don't ever let anyone tell you to change who you are.  Take it from me, someone who's tried that, it will only wreck you.  The only thing you really need to remember when someone is trying to change you, insisting you change, is how that demand makes you FEEL.  If it feels wrong, it is.  Self-doubt isn't good either, and anyone who instills doubt within you by their words, their actions, their demands are simply trying to make THEIR life better while destroying yours.  Appreciate the person you are.

Appreciate the person you are.  This means, appreciate everything about you, the good, the bad, the kooky, whatever it is that's inherently you, appreciate it all.  Change those things that YOU see needs changing.  Listen to input from those who actually love you and hold your best interests in mind when they speak.

One more cup of coffee...

Labs Post-Prednisone & Azathioprine

So looks like another medication is being added to the list--Lasix, a water pill.  This is needed to reduce the amount of EXCESSIVE water retention caused by the Prednisone.  I'm really glad to know about this addition, though it's going to be rough heading to the bathroom constantly.  Oh... but I'm SO very glad to do so!  You've NO idea.  But there is other news as well...

Liver enzymes: At the start my liver enzymes (which is NOT a liver function test) were elevated some 7-8 times that of normal, depending on which end of normal you do the math from.  Considered by the doctors I saw these were considered "significantly elevated."  Some people have way more elevation than that, but apparently research says that the actual numbers don't always indicate prognosis or how significant the disease is at the time of diagnosis.  But today, thankfully, I'm told that the one enzyme that is still elevated is only elevated by a little now and "Much better than where it was before." YAY!!  That's good news!

While I have to wait to get the labs actually in my hand to SEE them, I was also told that some tests came back showing mild muscle inflammation.  Not sure which test that was, but it doesn't really surprise me.  I have labs rechecked next Monday also in order to make sure the Azathioprine is helping, and not hurting things.

Good news, right!? :D  And hey, as long as those numbers go down and into the normal range, I can deal with some side effects from Azathioprine.  I mean, as we go along this journey the prednisone will be tapered... and THAT is DEFINITELY a good thing!  Not treating AIH means possible progression to cirrhosis.  Only thing statistics say about this that I don't like much is that 80% of people who go OFF medication to control AIH have a flare up within 1-2 years, and it often comes with the nasty addition of fibrosis or cirrhosis.  Yeah, I'm okay with medication inconveniences over death, thank you. ;)

So what's the deal with muscle inflammation?  I've no idea.  Guess that may be addressed next... we'll see.

How's that for some good news? :D

Random Thoughts at 3am

I had to make that meme.  I suppose it's just that one goofy part of me (sense of humor) that refuses to buckle under the health issues.  Yeah, I'm just ninja like that.

ANYHOO....Insomnia is a fickle bedfellow these days.  Incredibly unpredictable, I never quite know what it is I'm facing when I get into bed each night.  There's something triggering me to wake up when I go to bed, but I've yet to pinpoint exactly what that is.  Even nodding off on the sofa prior to going to bed doesn't guarantee I'll sleep once I get there, and in fact... it's almost a given now that I'm going to be waiting up, tossing and turning, until the wee hours of the night.  And what does this do besides keep me tired and exhausted?  For one, I get strange dreams, ones I really could've done without.  No, not nightmares... just dreams.  But still...

So it's 2am, 3am.. and stupid, random thoughts pop into my brain, which triggers more thinking, thinking, thinking... blah blah blah.  Damn.  Seriously.  WTH?  Most of it isn't even worth thinking about, I promise.

Okay, so falling back asleep this morning in hopes of getting about 5 hours I had a dream, and one that puzzles the crap out of me.  Well, I suppose most dreams don't make sense, right?  They're usually random babbling and broken intel of things we are either not dealing with, dealing with poorly, or unaware that we need to deal, you know, with those things.  But what about those dreams that aren't as chaotic and confusing?  What about the dreams that leave us thinking.. "Wow. That was so REAL!"  What about THOSE dreams?  You know the kind I'm talking about.

If your dream makes sense, what's the message?  That's the big question, isn't it?

I'm not sure what to make of my dream.  The content, which I'm not wanting to talk about, I think I understand, but my REACTION to it is yet another thing entirely.  It made me sad, seeing what I saw in the dream, though the actual thing happening wasn't a sad thing at all.  So.. wth gives?

Sorry to be vague about the dream itself, but some things are just TOO revealing of my own thoughts and feelings, feelings I'd rather keep to myself.  I'm trusting my instincts on this.  I may actually talk about this stuff in detail at some point, but I prefer to wait until I'm ready.  Hope you guys understand.

The other crazy thing that's happened today, post-dream, is that I feel a little anxious about my future.  It's like I'm being forced to assess what I want and how I plan to go about getting what I want, in terms of my future, happiness, health, and so on.  I don't have the luxury of being on auto-pilot, so introspection and continually assessing where I am and where I'm heading is really important.  T is more of an auto-pilot type, and it's not always easy for someone like me who's trying to take the wheel of my own life to be around someone who's just, well, letting life happen to him.  Not to say that his life is bad, because he's really chill and content most of the time.  I like to see where I'm heading, though, so laying back and riding the current isn't going to work for me right now.  Not sure it will ever work, to tell you the truth.

I wish I knew what my subconscious was trying to tell me.  I have a guess, but I don't LIKE that guess so am keeping an open mind and hoping I'm full of it. ;p

That's a lot of writing for someone who's as tired as I am.  Sheesh....

Overcast

So how's the weather?  Yes, at times this is probably the safest question to ask me.  When I don't have answers for myself, when the question concerns something that is beyond ridiculously difficult, I'm not always willing to dive in face-first and have a happy little discussion about it.  At the moment, if anyone asks, my standard response is akin to a shrug, really.  Honesty, because I have nothing to add to the discussion.  Trust me, I'm doing you a favor when I do this.

Don't push for answers--please; I most likely don't have any.  It's not that I'm at a loss for words, but who the hell wants to listen to me prattle on in contemplation over something I've yet to wrap my head around much less have answers for?  Yeah... you're reading this entry and feeling it now, aren't you?  Yeah.  I won't apologize for being sick or its effects on me, but I will say to anyone who's felt or sensed my withdrawal of late--this should resolve in time, and thanks for hanging in there.

So today's weather---overcast.  And for some reason I find that immensely soothing in ways I cannot possibly explain.

It's all self-explanatory, really...

Ever-Wondering Why I Bother to Give a Damn

It was a long holiday weekend filled with packing, moving a few loads over to the new house, and lots of anxiety having to be around T for that long.  I'm not being mean here, I assure you, but the magnitude in which he's "just not there" is ever more apparent when we're around each other too much.  And honestly, it drags me down and wears me out beyond words.  Not sure how I can handle this much longer.

I try very hard to be patient and understanding, but it's nearly impossible to feel those things when the other person is simply not trying at all.  I'm a ghost in my own household (notice I didn't say "home"), and the weight of being absolutely trapped is taking a tremendous toll on me both physically and emotionally.  Life isn't supposed to be this hard.

He's supposed to go visit his family in Florida next month, and no.. I'm not going.  By choice.  I'm simply not up to that long drive right now, and honestly... I really need the time alone; maybe I'll be able to breathe for once.  I'm a little scared I'll like being by myself much more than I realize.  Though it really wouldn't surprise me...as I crave space, peace, breathing room, a place to stretch these broken wings and try and remember what it feels like to fly.

...It was another weekend with my pointing out all the ways he tries to control me, how he treats me like a child, how he doesn't respect me... and as always it falls on deaf ears.  Oh, he vehemently INSISTS that he understands what I'm trying to say to him, that he gets it, that he will try harder, and so on..and on..and on..and on.  His words mean very little to me anymore, and his WORD... means even less.

I can't rely on him following through.

Honestly, I could understand his not being able to follow through on some things if there were a REASON.  But there's not.  He simply just... doesn't.  And it's very telling.

In the meantime I try desperately to hold on, to remember who I am, to remember my dreams, wishes, hopes, goals, and to remind myself that my needs matter too.  I also have to work on not being completely rolled over by him when he does this; and I have to say it's nearly impossible.  I mean, let's face it---I'm not the toughest person, and I'm sensitive to both people and environment.  And my environment right now is NOT conducive to happiness, joy, OR healing; three things of which I need desperately in my life.

How the hell did I get here?  Rhetorical question, really.  What I should be asking myself is 'How did I get here AGAIN?!'

Okay, so truth be told I'd have to say I HAVE asked myself that question and know how I got here again.  I'm not in the awful places that I've been in the past with relationships, but this one isn't healthy for me at all.  So what do I do so that I can thrive, live, and be able to breathe in my own space?

That's the million dollar question, isn't it?

And I'm working on that...

I am.  I have to.

HAVE to.

Results but no answers

First off, I hope everyone had a wonderful and blessed Thanksgiving!!!  No matter what's going on in our lives and the world we still can find much to be thankful for.  :)

Okay, so the CT w/contrast results came back and, well, it shows a few unsettling details.  Not entirely frightening or anything, but a little unexpected and confusing.  Naturally, I have to wait for my follow-up in January to get answers regarding the findings on the pulmonary function test, and as well as the new CT findings...

So, I get my copy of the CT w/contrast results and am encouraged at first by the word "stable" with regards to an enlarged lymph node... 1.7cm x 1.1cm at this time... but then I realized that the word you really WANT to see in lymph node findings is "reactive."  Basically reactive means due to an inflammatory or infection situation.  Ok.  The radiologist's report said to watch and follow up with other investigations.  I'm honestly, to tell you the truth, not all that concerned with this particular finding.

Still showing mild, scattered scarring, but below are a few new findings...

"There is a small amount of new and some slightly larger left pleural nodularity at the same level posteriorly and medially and also anteriorly..."  Will say more about this in a moment...

"There are a few areas of left pleural focal thickening that are new in areas and slightly larger in other areas, including at the level of the above-mentioned LLL nodule.  These can be reassessed on a short-term follow-up CT to see if they persist."

Mostly I'm not happy about the pleural nodules, nor about the pleural thickening.  So, I guess the saga continues as to what is what and what is to be done, if anything.

Results... but no answers.  *shrugs*  I'm not going to focus on this.  Being aware is the most important thing.  And as a matter of importance.. environment, both physical and mental/emotional is key to getting healthy.

Guess that's all I have to say at the moment---packing and moving things to the new house.

For now... just breathe... :)