Thursday, June 30, 2016

Well. Damn.

If there's anything that I'm NOT afraid of it's doctors and needles.  I don't mind a shot when necessary, and I don't mind blood work or IVs when needed.  However, one thing I discovered today is: I rather NOT okay with giving injections to myself.  And that, unfortunately, is what it's come to... at least right now.

So I saw my Endocrinologist today regarding my lab results for Cushings, Adrenal Fatigue, and... blood sugar issues.  The latter was a big concern because I ended up with Cushing's Syndrome while taking Prednisone, long-term (approximately 3 months).  My allergist stated flat-out that I would be lucky NOT to end up with Type II Diabetes due to my reaction to the Prednisone.  Lovely.  Especially given that my mom and oldest sister both had it (both deceased).

I have other health issues so the drug my doctor wanted me on can't be an option right now.  Lucky me, instead I get an injection... a treatment for Diabetes that's used for PRE-Diabetes/Insulin Resistance--which is where I'm at right now.  Damn.

Serum fasting glucose, Glucose Tolerance Test, AND serum Insulin were taken to assess IF I were in trouble and how badly.  My fasting INSULIN was double what it should have been, my fasting glucose was 111, and at one point... my fasting glucose (in the past few months) was 123.  I had NO idea about that 123 FG.  So here I am having to give myself a lovely injection in my abdomen (skin) once a week for 2 weeks to see if I need to continue that or not, long term, OR... if she's going to put me on another protocol.

The GOOD news is, at least on this one test, my adrenals are perfectly fine and right in the middle of the normal range.  She doesn't completely trust it so wants to test them again in 2 weeks to see where it is.  I also have to have my A1C tested again in a couple of weeks.

It's begun.

I'm NOT looking forward to giving myself an injection, even IF it's an automatic device and pre-loaded.  Just YUCK!!

I have hypOglycemia symptoms and have had those in the past.  I won't explain the process here of what happens BEFORE a person ends up diabetic, etc., because it's more time and energy than I have right now.  But hypOglycemia symptoms suck pretty bad.  Weakness, shaking, fatigue, cold sweats, headaches, etc.  What fun.  However, we're not exactly sure what's causing the chronic pain.  Endo says she also wonders about a myositis situation given the elevated Aldolase on a couple of occasions.  It's not elevated NOW, but I also was on prednisone and Imuran for 3 months, so that took care of any inflammation there might have been in my muscles.. causing muscle breakdown.

I don't know how anyone will ever be able to nail down the cause of the muscle pain after my having been on corticosteroids.  I just don't know.

Well, the pain is pretty severe so am going to sign off for now.  Wish me luck in the morning when I have to give myself my first injection.



Wednesday, June 29, 2016

Narcissist Much?

Narcissists.  I've not talked about this subject in some time.  The unfortunate truth is that I still struggle to get past the damage that was done and find it interfering even to this day with day to day life.  I had a good head start in the right direction with a therapist who helped me identify with what I was dealing with in a relationship, but that head start was only just that.  Sadly, the past is catching up to me as I feel myself and my life slowing due to illness.  I can no longer emotionally run or sprint to stay ahead of what still lurks behind in my past.

I won't go into the whole narcissist explanation again, and frankly I'm not well enough to deal with revisiting my experiences.  There are tons of articles and videos about the subject if you need more information.  Not that I won't visit or talk about this topic again, because I will.  Just not right now, not today.

My point here today is to warn anyone in a relationship with a narcissist that if they don't get out soon.. the effects of the experiences will be with you and possibly forever.  Your time and life, who you are as a person is precious and more fragile than you'd ever realize without that smack up side your head.  Not all needs that smack, but... I certainly did, and I regret very much NEEDING that to make me do the right thing and protect myself, to admit that I'm worth protecting.

As much as I avoid it I sometimes look back and feel such regret that I allowed myself to be emotionally beaten to a pulp.  Some may say I shouldn't 'go there,' that I shouldn't revisit such experiences, but to that I would have to say---it's important that I don't forget.  Whatever compelled me to abandon myself that way, the HORRIBLE self-esteem created by a strange childhood life experiences left me more vulnerable than I could've imagined.  My vulnerability to certain emotionally dangerous elements did a tremendous amount of damage, leaving me to accept, NEEDING to accept the fact that I was completely unprepared to defend myself.

My health began to go downhill at the very start of my experience.  Dealing with the insidious nature of another's narcissistic personality was draining, frightening, confusing, bewildering, and it left me absolutely questioning who I am.  That weakened state took hold, and fed by chronic stress and anxiety grew and eroded my health.  It's almost impossible to turn this off once it takes hold and takes control over you.  Just don't let it happen.  I wish I hadn't.

Even today I have to fight with the damage the experience left inside, the razor-sharp doubt that cuts strategically away at my happiness and health.  Many times I'm successful with shoving it all into the bowels of my subconscious.... but it's there, always there, always watching and waiting for me to let my guard down.

The message is to myself and to you.  If you deal with it now or have in the past... love yourself more than you loved that other person.  Love yourself more than you fear that other person.  Love yourself enough to get out and get help, because there's nothing more important than protecting yourself and your health.

I'm hurting too much to keep typing, so.... if you're curious or unsure if you're dealing with or living with a narcissist... don't assume you think you can recognize it even if your face to face with it.  Read about it, and watch the numerous videos out there about this subject.

One suggestion: Read about and watch videos regarding "Gaslighting," and if you recognize it as something being done to you---get out fast!



Tuesday, June 21, 2016

It's My Blogger, I Can Whine If I Want To, Whine If I Want To...


You would whine too if it happened to youuuuuu! No, not really.  But it made for an intro that invoked a smile, even if a small one, right?  My busy week has left me wondering, unsure, and stuck in a health loop that I'm not sure will end easily.  Wow.  Like THAT doesn't sound familiar.

Life being what it is we just need to get things off our chest or deal with the consequences of, well, holding it all in until we lose it.  Right?  Right.  I suppose many people have their own way of dealing with or working through things life tosses their way, but for me.. I have many outlets.  Blogging, however is the one remaining on my list that I can actually use at the moment.  So be it.

I already talked about the elevated ferritin, so I'll leave that one be for the moment.  I saw an Endocrinologist yesterday who believes I have (((( wait for it  )))) Adrenal Fatigue caused by (((wait for it again! )))... long-term use of Prednisone.  I knoooooooooow!  *Putting on my best shocked face*  Basically what this means is that the prednisone put my adrenals to sleep and I have absolutely nothing to help me with ANY kind of stress.  I've been stressed for YEARS; Chronic, nearly 24/7 unbelievable stress, both emotional AND physical.  Then, I have to do a 12 day Pred Pac last year, then 3 months THIS year.  The thinking is that, because I went into Cushings Syndrome, my adrenals shut down.  And this is what happens when you develop Cushings.

I have almost every single symptom, and my Endo doc recognized what it is.  It can't be confirmed without blood work, and I got that today.  And tomorrow, because of the Pred, because of the Cushings, because of the possible adrenal fatigue.. I have to have glucose testing to see if my pancreas is damaged and I'm edging, or IN, the throes of diabetes.  My serum glucose is not showing overt diabetes, but that doesn't tell the entire story.  Type II diabetes is one of the more common side effects.  Nifty, huh?  *sigh*

The other appointment I had today was with my bone doc.  Got the MRI results back, and as suspected, I have a torn rotator cuff.  Surgery, because my arm is UNBELIEVABLY painful when I move, is the only option for me.  Day surgery, they'll repair the tear, file bone spurs, and send me home with pain meds and a few restrictions for a while.  There are two problems with proceeding right away with surgery is the fact that I have been on Prednisone and it was 'long-term.'  The other problem is the possible adrenal fatigue.  You can't add additional stress to the body when it basically lacks any defense.  Suppressed adrenals are VERY bad news, and in this case it would mean my body couldn't handle the physical stress of surgery, even minor surgery.  Getting upset at someone will shut you down completely when your adrenals are "asleep."

I can't go into all the details about adrenal fatigue because, literally, it would take a research paper to explain what it is in detail as well as the processes involved.  It's progressive if it isn't addressed and quickly.  People can be heading down that road for years and not even know it, and if you're on that road already... prednisone will push you right over the edge.  And it will.. WRECK. YOUR. LIFE.

So where I am right now in this is simple: Wait for blood test results to see IF what I'm dealing with actually IS adrenal fatigue, and go from there.

Not much else I can do.

Guess I'm done for now... arms too tired to type much longer.

Oh... hope you like the song I left for you guys....


Saturday, June 18, 2016

To Live.

I've posted in my other blogs so am a bit spent here.  Please forgive any 'flat' statements.  And if this all comes across tired... it's because it is, and I am.  Somewhere between life and death there has to be actual LIVING.  For me, this is a bit more difficult to achieve.  So how and when do I get my health back, my energy back, my LIFE back?  Haven't I been asking this same question for what seems forever?   No need to answer that.
I'm sitting here right now hearing that inner voice of my body sending me every available signal that I need to lay down.  But that's not what I'm looking for, not what I want to do.  Bedridden isn't living. I've managed to get out of that constant bedridden state, but it hasn't made standing, sitting, walking, or even being alive... easy.  So now what?

I don't harbor any false hope of T ever obtaining the ability to be anything other than what he is, or what he chooses to be; lost in a non-compassionate state.  He fully embraces indifference, and I believe he does so because, well, it's simply lazy and easier.  A lot of men are like this.  Too many.  He knows he is too and doesn't seem to care that he is.  But he rails against the truth even while he admits it, stating that he's very loving and compassionate.  Okay.  Maybe.  But not to me.  What this has done over time is make me pull away, and yes I've told him this.  I know where this is heading where I'm concerned.

I long for that time when I wasn't dating, in a relationship, when I was fully myself even if my health was failing at that time.  And it wasn't all that long ago, really.  Time passes, months and years, and I've watched my health fail in a situation that lacks empathy.  What the hell am I supposed to do with that?

Many nights I can't sleep because the growing anxiety has bullied it's way into the only respite I used to know---sleep.  Dammit.

I wake up tired, spent, worn out, and unmotivated.  This isn't going to help me heal and, in fact, will hurt me even more.

Will today, this weekend, be yet another failure on T's part?  Will he insist yet again on buying food that hurts my health and ignoring ALL of my doctors' warnings?  I can't say I'm optimistic about this.

I'm exhausted trying to be my own champion.


Friday, June 17, 2016

Been a very long time since I heard this...

MRI, Lab Results, and Fireflies!

The problem with my shoulder has gotten much worse and I'm pretty much unable to use my arm for little more than simple tasks... such as typing.  I was referred to bone doctor, who sent me for an MRI, which was yesterday.  An hour long MRI... did not sit well with my body at all.  I won't go into all of that now, but... now I wait to find out if it's a torn rotator cuff, which the bone doc thinks it is.  So much for that.

I also received a call from my PCD about some labs that were done about a week ago, and I'm once again being referred back to my hematologist.  Ugh.  The last time was about a year ago and was  for low ferritin (anemia).  I received iron infusions for that and was fine in that respect, and my ferritin levels were restored to normal.

THIS time, my ferritin is elevated.  Again, the last few tests it was right in the normal range where it should be.  I don't eat much red meat (not a big fan and prefer a plant-based diet), and any protein sources usually include chicken and fish mostly, and on occasion... red meat.  My multi-vitamin does NOT contain iron because I'm in pre/meno so well, to be blunt, I don't get any visits from Aunt Flow or Uncle TOM anymore, not in almost a year now.  No need for iron in vitamins when this occurs.

Anyway, so... I have to see the blood doctor to find out why.  Not sure if timing is the key here, or if this is just a really good indication that I'm NOT dealing with hemochromatosis, which is iron overload.  I don't believe for a second I have that.  But it still is almost always due to liver issues.  Ugh.. which most of you guys know I already have (Autoimmune Hepatitis, or AI).

Thankfully my ferritin level is only mildly raised... but I was told it's still needs attention because it means my body is absorbing more iron than it should.  I do have to say I find this odd since I really do eat very little meat.  No telling wth is causing this, but... another wait and see situation I guess.

On another note---FIREFLIES!

I've seen a few of these little guys flying about lately, but there were MUCH MORE yesterday.... and that's beyond awesome!  I DO NOT EVER, NOR DO I THINK IT'S OKAY to catch them in a jar!!  They're population is dwindling---a very sad fact---so in the very short season of their lives... let them live!  They have to have firefly nookie to maintain their population!  lol Well, it's true!

So my front and back yard is covered with them in the evenings... and, the big light at the end of the driveway is being turned off.  It's billed to us, so we can choose to have it on or not.  We're choosing NOT to have it on due to artificial light hurting the mating process of these amazing creatures.  We also don't over-mow the lawn so as to allow as much of the population to grow as possible.

I.  Absolutely.  LOVE.  Fireflies.


Thursday, June 16, 2016

Lucid Dream...

I had my first lucid dream.  At least I think it was my first.  You know how dreams are... some of them you just can't remember.  But this one was pretty clear, and it had the usual recurring theme as my dreams tend to have, which has been the way of my dreams nearly my entire life.  There are basically 3 recurring themes, but I won't get into those now.  But as dreams go, this one was quite different then all the others.

The dream:

I was home, in 'my' room doing nothing but sitting quietly on the bed and looking out the window.  Clouds outside were very low, dark, broiling... and they shifted into what I recognized as a tornado (common theme in my dreams and not in the least scary, btw).  I jumped up and ran into the living room looking to see what damage there might be, can I yelled out to T that there was a tornado.

I could see the deck out back was damaged, the railing torn, and some trees, etc. were damaged.  I then walked into the breakfast nook area, and this is when I noticed the furniture was different, the room was different, and outside the breakfast nook window was another room.. instead of the deck and gorgeous view.

Once I realized everything was different I stopped, turned a little bit and told T... "Oh.  Never mind.  It's is just a dream." I then just looked around quickly, amused that I was dreaming.. then woke.

Weird.

And I don't mind weird at all, but... I felt in my dream, as I do after waking from an interesting or otherwise really good dream, rather.. disappointed.  Perhaps it was because I felt as if I had control of things in the dream, and much less so than in real life.

Whatever caused this lucid dream--I hope it happens again, because... I rather liked it.  Honestly, I wish I felt in real life the way I do in my dreams.  Why?  Because it's more like 'living.'


"....You've chosen lessons of pain."




I received a message with this video in it yesterday.  I have no idea who the person is who sent it... but, oddly.. this is one of my favorite songs and one I listen to every night.  Headphones on, dark room, and songs to obliterate the thoughts....



All alone you felt (All alone you felt)
Since the angels brought, you, down
Fly, too, high, now, you, have fallen perfectly

Certainly you'll see (Certainly you'll see)
[You] have a special purpose
To share
All, your, dreams, have, come, together perfectly

Could you open your mind
And see the reason
You've chosen lessons of pain
For a warrior's heart
Truth and inspiration
Reminds us to not be afraid

They don't understand (They don't understand)
Though they call themselves, your, friend
Fate, has, brought, you, back, to find your destiny

Should you travel deep (Should you travel deep)
Hear the voices, light, the, way
Souls, .... and, reveal your destiny

Could you open your mind
And see the reason
You've chosen lessons of pain
For a warrior's heart
Truth and inspiration
Reminds us to not be afraid

*instrumental*

Wipe your tears
It's all right
And revel yourself in the truth
You're the strongest heart

All these tears
All these nights lead down a road that seems like a maze yet
All you encounter will make sense in time

Could you open your mind
And see the reason?
You've chosen lessons of pain
For a warrior's heart
Truth and inspiration
Reminds us to not be afraid

Could you open your mind
And see the reason
You've chosen lessons of pain
For a warrior's heart
Truth and inspiration
Reminds us to not be afraid

Could you open your mind
And see the reason
You've chosen lessons of pain
For a warrior's heart
Truth and inspiration
Reminds us to not be afraid


Sunday, June 12, 2016

**prayers**



I'm not going to talk about the Florida tragedy today.  The entire morning was consumed with conversation about it, here at home and online.  What else is there to really say about the situation that hasn't already been said?  I'm simply not going to go there... here.  Prayers for the victims and family....


Friday, June 10, 2016

Getting it all off my chest...

Well, it's a little cathartic to be able to vent, to scrutinize, to assess, to get it all out when something's bothering me.  If you want to know exactly what I'm talking about... it's HERE.  PART I and PART II were needed as this was, well, you'll see if you're curious enough to go there and read.  The discussion was about Beta men vs Alpha men and the necessary balance of power in a relationship.  I'm past that now, moving on, and wondering what the hell I'm going to do about my life as it is at the moment... not much of a life at all.  Aren't I always struggling with this?  Don't answer.

Exhaustion overcomes on the other side of stress.  I'm pretty much there at the moment and fighting like hell to defeat its encroachment.  What I'm left with is a familiar struggle to find my strength and focus again.  It's okay.  It is what it is.

I have to face each day like I don't remember the one before.  I can't allow myself to have any regrets, or allow the sense that I lost yet another 24 hours of my life.  There aren't any do-overs.  What I do is wake and think to myself.. "Today is the day."  It's a mantra of sorts, and one that has yet to actually work.

I'm spent.  Working on those two hefty entries has left me with virtually nothing.  So, if you're curious... click on the link above to read the most of today's crapola.


Thursday, June 9, 2016

"G" gave me an ORDER! OH NO SHE DI'NT!

OH yes she did! ;p  And then we cracked up, drank coffee, and drained our cell phone batteries talking.

Basically, we have this same conversation about twice a month, sometimes more often depending on how much I put into my blogs.  You see, she has ONE blog that she pours absolutely everything into.  And that works for her.  Not so much for me.  So, on occasion, like yesterday, she told me I "Absolutely must" put re-share the links across my blogs so people realize I'm not always saying the same thing in all the same places.  Okay.  If I must. ;p  She's a good egg, so I'll indulge her every so often.

The one thing I'm not on board with is her insistence that I talk here about the same things I talk to HER about.  Yeah, no.... I don't think ANYONE is ready for THAT! lol


NOTE: The links below can also be found on the menu section in each of my blogs.  Easy peasy. ;)

My other blogs:

Boo's Juicy Bits

This Free Spirit

Where Fireflies Dream

The Crap I Spew

All Things Ephemeral


Happy now, G?  Now let's see you bring some order to that mincemeat you call a blog. (*snort*).

Yeah, we've been friends for several years so can jab at each other.  All in good fun.. :)

Wednesday, June 8, 2016

Anger? Surprise? Inspiration at its worst? WTH?

REPOST from my other blog(s):

Sometimes I get a spark of something that inspires me.  Such inspiration doesn't always present itself in the best way, though, but I usually try to go with it when it happens.  Such gems shouldn't be taken for granted but taken advantage of.  It really is that rare.

In the midst of fighting for every drop of energy that can be found wherever it is I can find it, a tiny burst will make its way into the day and nudge me.  Okay, I can certainly deal with that.  Wish there were MORE of it, but I'll take what I can get and go with it nonetheless.

The fuel for this little 'fire' isn't from a good source, definitely not a positive force, and most definitely not from a pleasant source.  Be that as it may, there it is... kind of like when your dog has an accident and you're left looking at it wondering to yourself what you did to deserve such a... 'gift'? lol  Okay, okay... enough with lame attempts at comedy.  Even so, the conversation with a friend of mine earlier today was what ignited this whatever-it-is and sent me on a journey to try and put my thoughts in order.  I found the results of that rather.. lacking.

All this blabbering, to be honest, is just my working through it all.  Not the conversation, because that was interesting and creatively invigorating.  But the chaos I'm dealing within the thought process at the moment is simply trying to pull together the shards of data that's left from past experience.  Anyone who understands this knows where I'm coming from.  G knows.  She gets it.  And, from what I read on her blog(s)... she's been able to run with it without tripping like a clown every step of the way that I've been.  Eh.  I'm still confident that this purging will eliminate the chaff and reveal the good stuff.  I'll be back to discuss that when it happens.


The Art of ASSumption & The Most Powerful Thing to Be.

I spent the last 1/2 hour or so talking on the phone to a friend of mine, who also has a blog as well, and we talked about life, health, girl stuff, and so on.  During the course of the conversation, and as the conversation settled into more meaningful, deeper topics... we both came to the realization that scrutiny is good, and ASSumption is bad.  Okay.  Sounds silly when you put it like that, but why confuse the issue with pretty words?

Somewhere between acquiring information and implementing reason something can go very, very awry, and the consequences aren't anything to write home about.  So why do people fall prey to the rather weak lure of assumption when the truth is often, though not always, fairly interesting?  G and I concluded that we definitely are in the middle of a dung-pile of thrill-seekers who can't handle being removed from the most caustic drama available.  And when it's not available... they set about constructing the facade that will most assist them in their endeavor to be shocked, appalled, thrilled, and mortified.  How crazy is that?  Well, maybe it's not crazy at all.

Humans thrive on drama.  Whether you have drama in your life or not, and it doesn't matter who's fault the drama is, people just can't seem to help themselves when said drama isn't up to par for their taste.  It takes talent, G and I agree on this, and we believe that in all seriousness people hone and perfect this skill that is not at all unlike mental heroin.  Once people try it.. they can't do without it, and when their 'stash' of drama runs low, or it's just not doing it anymore for them, they have to enhance it somehow.

Right before G and I hung up so we could, you know, blog about it (grin)... we both thought there was, in so many ways, a certain kind of power with being honest with blogging AND life.  When you realize your advantage, when it finally hits you that you're actually in a position power... the anger against having ASSumption being projected on you... that's the moment you win.

The most powerful thing to be, hands-down, is underestimated.

Now, this isn't anything new.  I've known this, as most do, my whole life.  Or at least fairly early on at some point... usually in childhood.  Even if we don't recognize it right off deep in our gut we know.  The first time someone doesn't believe us when we're telling the truth--realization sets in.  And either then, or later on in life, at some point in time... you understand fully that the moment people don't give you credit for having intelligence is the moment they relinquish their own power.. to you.

People who don't respect you try, even subconsciously, to discredit you.  This is a very strong form of underestimation of you as a person.  This means they underestimate you, therefore, can't predict what you will say, do, or think at any moment in any situation.  The mistrust they infuse doesn't move beyond themselves and, therefore... they weaken their own ability to 'keep up.'  My question in all of this is.. "Why on earth would they deliberately assume the position of weakness?"  Well, that's something only those people can answer.

I can be amused by all of this easily.  However, as G and I agreed, there's a certain element of pity that comes into play when you realize that when people choose to inject ASSumption into truth that their lives must become terribly distorted as a result.  How can anyone find anything good if the distortion becomes a barrier to actual communication?

At this moment I can visualize G blogging away frantically---excited to know she's not as powerless as she once thought.  It was a good conversation.

Off to re-post on my other blogs, then to read G's blog...

What a weird freaking day.



"We came. We saw. He died!"

Evil has a name, a goal, and a very shrill voice....


Who's life am I actually living? And if not mine, then a lie.

NOTE:  For anyone new, there's a list of links in the menu column to my other blogs.  I try to keep things specific to whichever blog I'm posting in.. something that was requested/suggested of/to me sometime back.  So if you're like some of the people I know who read understand that the conversation often, though not always, changes from one to the next.  I've made my rounds today, and will be going back to post again in most as I have a bit of catching up to do.

The beautiful thing about being oneself is the notion that you're living your own personal truth.  It doesn't matter if anyone agrees with you or your choices because living truthfully means making no apologies.  Not that bad behavior isn't part of anyone's truth, because as humans we fall far short of being or living perfectly.  Living truthfully really only means that, right wrong or indifferent, all successes and failures, even mistakes... are at the very least completely honest in nature.

I'm not going to talk here about human error that results in hurting someone's feelings, etc.  What I want to focus on is the natural result of living someone else's life.  Some of the deepest wounds ever come from betraying yourself.  I know, because I've done it.

Never allow yourself to be manipulated.  The trick here is to know when you are.  Some people are quite gifted in the art of manipulation and it's only after the damage is done and the sting sets in that you realize what's happened.  Even then, you may only have a guess, because recognition is often difficult and require insight and assistance to fully recognize the culprit.  This also happened in my case.

What is it like to live a lie?

Your subconscious will know and often react much in the same way that you react when your hand accidentally touches a hot pan handle.  You recoil instantly, only inwardly from the immediate danger, and the pain burns on long after you've countered and reacted instinctively.  I believe this is why we often keep reaching for that same hot handle again---because we haven't actually recognized what it is we've done and that it's caused not only pain.. but also damage.  So, we reach again.

From my perspective and experience this same, harmful experience repeats itself endlessly until we finally see what's causing the hurt, the pain, the discomfort.  We're outside of ourselves at this point, feeling the pain, seeing the damage, but unable to comprehend that our own actions are to blame.  That realization, by the way, comes when it comes.  We either see it or we don't and we don't until we do.  This is different for everyone, of course.

I find myself once again in that same perpetual, ongoing and damaging loop of living through someone else's ideals, wants, needs, views, demands, rules, and so on.  And it's not working now just as it didn't work in the past.  This feeling, at the moment, is like not being able to breathe or move, like being bound and gagged and placed in a dark room where my experiences are only ones injected into the dark by another.  This is what living a lie is like.  At least for me.

As I find myself pushing aside my needs as a human being, natural thoughts, opinions, instincts, interests, etc. while adapting that of another, for their comfort, the damage is evident.  Only this time I'm unable to simply allow what isn't me to fall away so I can heal and return to my own life, my own genuine self, my truth.  Reconciling this is damn hard, I'll be honest.

All those things I enjoy, want, dream of, hope for and need are cemented beneath the very solid ground on which another stands.  It's not pre-meditated, but it is a form of oppression.  I've been here before and the result wasn't pretty at all.  I healed, mostly, but the scars are deep, distinct, and still tender.  But at least I know they're there, why they're there.

This is my struggle yet again, fighting to always remember who and what I am while being basically forced to live through someone else's life.  It's a very slippery slope.

Regaining my health and my strength is CRITICAL right now.  There's no respite from this, really.  No decompression chamber where I'm free to just be who I am and take care of myself the way that is positively vital to my well-being.

.... More later.  At the moment the pain demands I give it attention.



Wednesday, June 1, 2016

The fireflies have returned...

From my other blog:

I often see them outside the bedroom window at dusk and in the dark.  Sometimes one will cling to the outside of the window sill... and just blink... almost like it's saying hello.  The whimsical part of me remembers better times, before the pain and weakness, when I would go outside and just stand there among them.  There really was no place or experience more peaceful.  Now, I watch from afar, wanting desperately to be a participant again... in life.

Not sure when or if I'll ever be 'normal' again.  I'm losing hope, I have to admit.  My own light flashed brightly then.. simply went out for the most part.  And here I am, waiting in the dark, just waiting for those with the power to help me heal to... help me heal.

I waver these days between hope & depression.  And, there aren't any 'up' times at all anymore.  This severe pain, worse than anything I've ever known, has literally taken over my life.  Now, my life is measured, literally, between those doses of Tylenol... as I wait.

I've sent up the flare....

And I'll continue to wait as long as I can...

When I'm without words, music....


When I'm without words, music...